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It's time to turn the tide!
To bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community.
To bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community.
Charity & advocacy
Rare Disease Awareness Day Calendar
By admin
14 February 2024
RARE News
Sickle Cell Disease Association of America promotes Kevin Amado Jr.
By admin
27 March 2024
Letters to the editor
How can we get the patient heard by the regulators?
By admin
27 March 2024
RARE News
FDA approves nonsteroidal treatment for Duchenne muscular dystrophy
By admin
26 March 2024
RARE REV-inar
Eight challenges in developing rare disease therapies
By admin
25 March 2024
RARE News
Rare Disease Day 2024 – Call for greater awareness of X-linked adrenoleukodystrophy and cerebral adrenoleukodystrophy
By admin
20 March 2024
RARE News
Rare disease advocates learn to accelerate therapeutic development at 9th RARE Drug Development Symposium
By admin
19 March 2024
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