Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
RARE Ophthalmology
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Charity partner news
Editor’s picks
Events
Industry insights
Medical
Patient voice
Press releases
RARE employment
RARE parenting
RARE ramblings
RARE REV-inar
Science & tech
Sunday sessions
Turning the tide for rare disease
Weblinks and references
THE PEOPLE OF RARE
Digital Spotlight
Resources
RARE Reports
Charity Partners
Charity Signup
WORK WITH US
Rare Revolutionaries
Corporate Friends
Community Gallery
Rare Youth
Privacy Policy
Latest Edition
RARE Ophthalmology
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Charity partner news
Charity partner news
Research grant of over 2 million Euro offers new hope for children with rare condition Schinzel-Giedion syndrome
By Rebecca Pender
26 January 2021
Charity partner news
FSD call for innovative research projects in advanced therapies for Dravet syndrome
By Rebecca Pender
19 November 2020
Charity partner news
Ground-breaking patient-led AKU study published in the Lancet
By Rebecca Pender
11 October 2020
Charity partner news
International Ataxia Awareness Day
By Rebecca Pender
24 September 2020
Charity partner news
The yellow front door, the beach hut & those patch houseplants!
By Rebecca Pender
16 September 2020
Charity partner news
Bardet-Biedl Syndrome UK (BBS UK) publish booklet supporting children and young people with Bardet-Biedl Syndrome in learning environments, across the UK
By Rebecca Pender
10 September 2020
Charity partner news
Jeff D’Angelo: founder of CHAMP 1 research foundation tells his RARE story
By Rebecca Pender
11 August 2020
« Previous
1
2
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset