RARE News

Walk with WAPO through the Experiences of People Living with Acromegaly

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30 October 2024

RARE News

MENA Congress for Rare Diseases 2025

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29 October 2024

RARE News

CureDuchenne partners with Blizzard Entertainment and World of Warcraft for limited-time charity pet program

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29 October 2024

RARE News

PRISMS Creates Awareness for Smith-Magenis Syndrome on Smith-Magenis Syndrome Awareness Day

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28 October 2024

RARE News

Laura MacNeill named new CEO of CMT Research Foundation

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23 October 2024

RARE News

It’s CMT Awareness Month during October, although less than 10% of the UK population have heard of CMT (according to a survey)

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22 October 2024

RARE News

Accessia Health opens financial assistance program For individuals with rare blood disorder myelodysplastic syndromes

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21 October 2024

RARE News

CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign

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1 October 2024

RARE News

Sickle Cell Disease Association of America Inc. holds convention in Atlanta

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1 October 2024

RARE News

PSPA invites applications for small research projects looking into PSP & CBD

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24 September 2024

RARE News

13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts

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24 September 2024

RARE News

UK LSD Collaborative set to release new short—‘Hadid and I’

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2 September 2024

RARE News

Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life

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2 September 2024

RARE News

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

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2 September 2024

RARE News

Exercise is medicine for people living with PSP & CBD

By admin

28 August 2024

RARE News

CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024

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23 August 2024

RARE News

Ladies Luncheon Newport Beach to debut at Shady Canyon Golf Club on October 15 benefiting CureDuchenne

By admin

20 August 2024