Turning the tide for rare disease

Life wants me here!

By admin

9 May 2025

RARE caregiving

The caregiver engine steers accelerated rare cancer trials

By admin

7 May 2025

RARE News

Charity launches appeal to increase research into PSP and CBD

By admin

5 May 2025

RARE News

Sickle Cell Disease Association of America names events manager

By admin

29 April 2025

RARE News

Graeme Souness to swim the English Channel, there and back, to be the difference for EB

By admin

29 April 2025

Turning the tide for rare disease

This isn’t just a day. It’s a movement. Undiagnosed Day 2025: why action can’t wait

By admin

29 April 2025

RARE News

UK charity releases new funding for research into PSP & CBD

By admin

25 April 2025

RARE News

NephCure celebrates second annual APOL1 Kidney Disease Awareness Day on April 29, 2025

By admin

23 April 2025

RARE News

Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community

By admin

23 April 2025

RARE News

Save the date: 1st International Clinical Care Symposium on spinal muscular atrophy.

By admin

23 April 2025

RARE News

National charity expands helpline support in Wales

By admin

17 April 2025

RARE News

Join as a trustee and help transform the future for children with Schinzel-Giedion syndrome

By admin

3 April 2025

RARE News

CureDuchenne and Children’s Hospital of Orange County partner to bring world-class care to families with Duchenne muscular dystrophy

By admin

7 March 2025

RARE News

Unlock the future of pharma marketing: the 8th Annual Pharma Omnichannel Excellence Conference

By admin

5 March 2025

RARE News

Exposing the gaps in screening and care for hereditary brain aneurysms

By admin

3 March 2025

RARE News

SMA Europe announces the awardees and projects shortlisted through its call for research no.12

By admin

28 February 2025

RARE News

RARE DISEASE DAY 2025: Artistic expressions bring to life realities of rare conditions

By admin

27 February 2025