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Charity & advocacy

Teach RARE: a family’s rare disease journey continues by supporting caregivers with special education teaching and learning

By Joe Rumney
15 March 2023

Press releases

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By Joe Rumney
20 January 2023

Press releases

Know your sickle cell trait status, according to new campaign

By Joe Rumney
20 January 2023

Press releases

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By Joe Rumney
19 January 2023
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