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Turning the tide for rare disease

A new year brings new opportunities: Global Genes – supporting patients, caregivers, advocates and organisations

By Joe Rumney
1 February 2023

Industry Insights

“Developing positive change in how we diagnose, treat and care for patients with a rare disease.” Rhetoric or reality?

By Joe Rumney
1 February 2023

Press releases

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By Joe Rumney
1 February 2023

Turning the tide for rare disease

Medics 4 Rare Diseases: reframing rare disease – one Instagram story at a time

By Joe Rumney
25 January 2023

Press releases

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By Joe Rumney
20 January 2023

Press releases

Know your sickle cell trait status, according to new campaign

By Joe Rumney
20 January 2023

Press releases

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By Joe Rumney
19 January 2023
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