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Author:
Rebecca Pender
Press releases
PIP-UK Poland syndrome charity launches new podcast series: What about PS? A Poland Syndrome Podcast
By Rebecca Pender
30 April 2023
Medical
The GLISTEN trial
By Rebecca Pender
14 April 2023
Science & tech
Optimising market access for rare disease products: insights from Craig Caceci
By Rebecca Pender
27 February 2023
Press releases
Raising awareness and celebrating people with craniofacial differences
By Rebecca Pender
24 January 2023
Editor's picks
RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience
By Rebecca Pender
23 January 2023
Events
Rare Disease Innovation & Partnership Summit
By Rebecca Pender
19 January 2023
Turning the tide for rare disease
Barriers to care in sickle cell disease: the reflections of La’Shardae Scott, social worker and RARE mother
By Rebecca Pender
18 January 2023
Events
Cell & Gene Therapy Summit 2023
By Rebecca Pender
18 January 2023
Press releases
PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community
By Rebecca Pender
18 January 2023
Patient voice
Wings of Fire: escaping the shadows of a rare disease that was undiagnosed for 25 years
By Rebecca Pender
11 January 2023
Press releases
“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases
By Rebecca Pender
6 January 2023
Turning the tide for rare disease
Rare × 2 = ? What having twins with a rare condition teaches you about people
By Rebecca Pender
4 January 2023
Press releases
The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community
By Rebecca Pender
3 January 2023
Press releases
Blueprint Medicines reports clinical data highlighting leadership in developing targeted treatment options for patients with systemic mastocytosis
By Rebecca Pender
22 December 2022
Press releases
Zynerba Pharmaceuticals announces publication of data from phase 3 CONNECT-FX study of Zygel™ in the Journal of Neurodevelopmental Disorders
By Rebecca Pender
20 December 2022
Turning the tide for rare disease
The Christmas ring
By Rebecca Pender
19 December 2022
Turning the tide for rare disease
Rare Diseases Lesotho Association: revolutionising rare disease care and raising awareness in Lesotho
By Rebecca Pender
15 December 2022
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