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Rare insights

Sanius Health’s mission to personalise care for people with sickle cell disease—using advanced wearable technology

By rpender
29 September 2022

Rare insights

Governing with Purpose: How to lead a brilliant board – a guide for charity trustees

By rpender
29 September 2022

Science & tech

Merging the metaverse and the rare disease community: join the conversation

By rpender
22 September 2022

Events

The Dash Alliance and RARE Revolution Magazine – levelling up for RARE

By rpender
21 September 2022

Medical

The RAPSODI study: an online study to understand the association between the Gaucher-causing gene and Parkinson’s

By rpender
14 September 2022

Turning the tide for rare disease

Being a strong father does not mean staying silent in times of trauma

By rpender
14 September 2022

Turning the tide for rare disease

A ‘bullhorn in stilettoes’: Tisha Foster’s unique approach to raising awareness of hidden disabilities

By rpender
12 September 2022

Patient voice

Passing on a rare disease: a RARE mother’s journey from ‘blameless guilt’ to joy

By rpender
5 September 2022

Press releases

The 2022 Jeans For Genes grant programme is now open and inviting applications

By rpender
1 September 2022

Press releases

Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month

By rpender
31 August 2022

Turning the tide for rare disease

Ms Colorado America 2022: two-time aneurysm survivor and a champion for cardiovascular disease prevention

By rpender
31 August 2022

RARE employment

Join our team

By rpender
29 August 2022

Turning the tide for rare disease

Jeans for Genes: raising awareness and funds to help people living with life-altering genetic conditions

By rpender
29 August 2022

Events

Operationalise: Early Access Programmes Summit Europe 18-20th October 2022

By rpender
24 August 2022

Events

RARE Rev-inar Episode 001 Early Access Programmes

By rpender
24 August 2022

Press releases

Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).

By rpender
22 August 2022

Turning the tide for rare disease

Breast implant illness: a patient’s experiences and her mission to raise awareness and improve care

By rpender
19 August 2022
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