Do you feel the quality-of-life assessment form adequately allowed you to convey the full impact of your condition, or that of your loved one, and what a good quality of life means to you, or your loved one?
1 December 2025

Insights gathered from RARE Revolution’s social media polls across Facebook, Instagram and LinkedIn.
Results from 19 respondents.
insights brings you the latest views from your global RARE community. To access more insights click below.