Dr Amélie Lothe: the rationale, design, ethical considerations and impact of open label extensions
17 November 2025
Interview by Nicola Miller, RARE Revolution,
featuring Dr Amélie Lothe, medical community head for rare epilepsies,UCB

“We involve the caregiver in our studies by asking, for example, what is the global functioning of the patient? What is the impact on their quality of life, not only the quality of life of the patient, but also the quality of life of the caregiver, of the families? What is the level of anxiety of this caregiver?” Amélie