Interview by Nicola Miller, RARE Revolution insider,
featuring Tobias Hagedorn, managing director,DIGPKUand secretary of theEuropean Society for Phenylketonuria (ESPKU)

“We cannot continue to rely on the goodwill of passionate individuals. Sustainable advocacy requires investment in people.” Tobias

“We are the only ones without economic bias.” – protecting the unbiased voices of advocacy is imperative.

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