IN the know

IN the know

Key challenges in transition: how young people with rare diseases are falling through the net

By Becky Pender, RARE Revolution

2 February 2026

IN the know

Rare Revolution poll finds quality of life matters hugely for rare disease individuals and families, and industry could do more

By Julie Penfold, RARE Revolution

2 February 2026

IN the know

Following an unsettled year how do you feel about the future of rare disease pipelines?

By Emma Bishop, RARE Revolution

26 January 2026

IN the know

Have you been personally impacted by changes in your company during 2025?

By Emma Bishop, RARE Revolution

19 January 2026

IN the know

Curative ambitions: Chiesi Group and Arbor Biotechnologies forge a new path in genomic medicine

By Nicola Miller, RARE Revolution

19 January 2026

IN the know

MHRA on their reform plans to transform regulatory approaches for rare diseases

By Julie Penfold, RARE Revolution

19 January 2026

IN the know

How do new medicines get approved by the European Union?

By Florence Cornish, RARE Revolution

12 January 2026

IN the know

How has the political landscape during 2025 impacted your company/the company you work for?

By Emma Bishop, RARE Revolution

12 January 2026

IN the know

Why rare disease medicines can’t be priced like generics—and why that matters for patients

By Owen Marks, Omgen

12 January 2026

IN the know

“Hope floats”

By Nicola Miller, RARE Revolution

5 January 2026

IN the know

Macau first: a scalable entry route for paediatric orphan drugs into Greater China

By CONTRIBUTOR

15 December 2025

IN the know

RARE Revolution poll finds glaring gaps when patient advocacy organisations work with industry

By Julie Penfold, RARE Revolution

15 December 2025

IN the know

Have you, or your loved one, directly benefitted from a change in service, care or treatment options following the completion of a quality of life assessment form?

By Emma Bishop, RARE Revolution

15 December 2025

IN the know

Who gets to be a genius? The ongoing impact of gender bias in science

By Florence Cornish, RARE Revolution

8 December 2025

IN the know

Bridging innovation and access: How medical affairs shapes the future of rare disease therapies

By CONTRIBUTOR

8 December 2025

IN the know

Were you clear on the motivation for collecting the data on your quality of life form?

By Emma Bishop, RARE Revolution

8 December 2025

IN the know

Rethinking youth engagement

By Michael Wilbur, MW Advocacy Solutions

1 December 2025

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