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RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
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IN the loop
IN the loop
Clinical trials using biomarkers and why randomised control studies are unethical in rare
By Emma Bishop, RARE Revolution
13 October 2025
IN the loop
The power of words: How should we write about science?
By Florence Cornish, life sciences writer
29 September 2025
IN the loop
Looking ahead: the future for rare disease research and treatment
By Julie Penfold, RARE Revolution
22 September 2025
IN the loop
Progress in delivering rare therapies
By Julie Penfold, RARE Revolution
15 September 2025
IN the loop
A global vision for rare disease: Inside the ground-breaking RDI-Lancet Commission on Rare Diseases
By Emma Bishop, RARE Revolution
8 September 2025
IN the loop
Four years of the UK’s Rare Diseases Framework – what progress has been made?
By Julie Penfold, RARE Revolution
1 September 2025
IN the loop
The trust–success ratio: Why building trust is the cornerstone of PPIE (Public Patient Participation Inclusive and Engagement) – A patient’s perspective
By CONTRIBUTOR
25 August 2025
IN the loop
Breaking the cycle: rebuilding trust in medical research and delivery
By Nicola Miller, RARE Revolution
18 August 2025
IN the loop
Understanding the true cost of clinical trials
By CONTRIBUTOR
4 August 2025
IN the loop
Stretched thin
By Nicola Miller, RARE Revolution
28 July 2025
IN the loop
Health and humanity – why holistic care must be a shared industry responsibility
By CONTRIBUTOR
7 July 2025
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