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Posts by CONTRIBUTOR
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CONTRIBUTOR
Nadine Großmann, vice chair FOP Germany, chair of the IFOPA’s board of directors, vice chair LOUDRARE e. V., PhD candidate rare diseases
By CONTRIBUTOR
2 March 2026
How real-time, real-world data unlocks precision in rare disease marketing
By CONTRIBUTOR
2 March 2026
Putting you in the heart of the rare community – Hope for Hypothalamic Hamartomas UK
By CONTRIBUTOR
2 March 2026
Accessing life-sustaining equipment: a silent systemic gap
By CONTRIBUTOR
23 February 2026
Withdrawal of USAID is fanning winds of entrepreneurial change across Africa
By CONTRIBUTOR
23 February 2026
Lesa Brackbill, director of advocacy, Patient Advocacy Strategies
By CONTRIBUTOR
16 February 2026
incognito: the secret life of a…rare disease parent and charity founder
By CONTRIBUTOR
16 February 2026
Putting you in the heart of the rare community – Timothy Syndrome Alliance (TSA)
By CONTRIBUTOR
9 February 2026
AI is creating a new Darwinian jobs market where the super employee is king
By CONTRIBUTOR
9 February 2026
Kris Pierce, strategic lead, Rare Disease NSW and founder, SCN2A Australia
By CONTRIBUTOR
9 February 2026
incognito: the secret life of an…independent patient engagement consultant to industry
By CONTRIBUTOR
2 February 2026
My daughter is going blind. We are building a new model for rare disease gene therapy
By CONTRIBUTOR
26 January 2026
Fatima Scipione, vice president, Global Patient Affairs, Blueprint Medicines, a Sanofi company
By CONTRIBUTOR
26 January 2026
Flaminia Macchia, chief operating officer, Orphanet-AISBL
By CONTRIBUTOR
12 January 2026
Patricia Weltin of Beyond the Diagnosis
By CONTRIBUTOR
15 December 2025
Macau first: a scalable entry route for paediatric orphan drugs into Greater China
By CONTRIBUTOR
15 December 2025
Bridging innovation and access: How medical affairs shapes the future of rare disease therapies
By CONTRIBUTOR
8 December 2025
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