Posts by CONTRIBUTOR

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CONTRIBUTOR

Nadine Großmann, vice chair FOP Germany, chair of the IFOPA’s board of directors, vice chair LOUDRARE e. V., PhD candidate rare diseases

By CONTRIBUTOR

2 March 2026

How real-time, real-world data unlocks precision in rare disease marketing

By CONTRIBUTOR

2 March 2026

Putting you in the heart of the rare community – Hope for Hypothalamic Hamartomas UK

By CONTRIBUTOR

2 March 2026

Accessing life-sustaining equipment: a silent systemic gap

By CONTRIBUTOR

23 February 2026

Withdrawal of USAID is fanning winds of entrepreneurial change across Africa

By CONTRIBUTOR

23 February 2026

Lesa Brackbill, director of advocacy, Patient Advocacy Strategies

By CONTRIBUTOR

16 February 2026

incognito: the secret life of a…rare disease parent and charity founder

By CONTRIBUTOR

16 February 2026

Putting you in the heart of the rare community – Timothy Syndrome Alliance (TSA)

By CONTRIBUTOR

9 February 2026

AI is creating a new Darwinian jobs market where the super employee is king

By CONTRIBUTOR

9 February 2026

Kris Pierce, strategic lead, Rare Disease NSW and founder, SCN2A Australia

By CONTRIBUTOR

9 February 2026

incognito: the secret life of an…independent patient engagement consultant to industry

By CONTRIBUTOR

2 February 2026

My daughter is going blind. We are building a new model for rare disease gene therapy

By CONTRIBUTOR

26 January 2026

Fatima Scipione, vice president, Global Patient Affairs, Blueprint Medicines, a Sanofi company

By CONTRIBUTOR

26 January 2026

Flaminia Macchia, chief operating officer, Orphanet-AISBL

By CONTRIBUTOR

12 January 2026

Patricia Weltin of Beyond the Diagnosis

By CONTRIBUTOR

15 December 2025

Macau first: a scalable entry route for paediatric orphan drugs into Greater China

By CONTRIBUTOR

15 December 2025

Bridging innovation and access: How medical affairs shapes the future of rare disease therapies

By CONTRIBUTOR

8 December 2025

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