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Posts by CONTRIBUTOR
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CONTRIBUTOR
Putting you in the heart of the rare community – Timothy Syndrome Alliance (TSA)
By CONTRIBUTOR
9 February 2026
AI is creating a new Darwinian jobs market where the super employee is king
By CONTRIBUTOR
9 February 2026
Kris Pierce, strategic lead, Rare Disease NSW and founder, SCN2A Australia
By CONTRIBUTOR
9 February 2026
incognito: the secret life of an…independent patient engagement consultant to industry
By CONTRIBUTOR
2 February 2026
My daughter is going blind. We are building a new model for rare disease gene therapy
By CONTRIBUTOR
26 January 2026
Fatima Scipione, vice president, Global Patient Affairs, Blueprint Medicines, a Sanofi company
By CONTRIBUTOR
26 January 2026
Flaminia Macchia, chief operating officer, Orphanet-AISBL
By CONTRIBUTOR
12 January 2026
Patricia Weltin of Beyond the Diagnosis
By CONTRIBUTOR
15 December 2025
Macau first: a scalable entry route for paediatric orphan drugs into Greater China
By CONTRIBUTOR
15 December 2025
Bridging innovation and access: How medical affairs shapes the future of rare disease therapies
By CONTRIBUTOR
8 December 2025
Martine Pergent of IPOPI
By CONTRIBUTOR
1 December 2025
Putting you in the heart of the rare community – SMS Foundation UK
By CONTRIBUTOR
24 November 2025
Serene Forte of Forte BioConsulting, LLC
By CONTRIBUTOR
17 November 2025
Putting you in the heart of the rare community – Action FCS
By CONTRIBUTOR
10 November 2025
Wendy Erler of Sarepta Therapeutics
By CONTRIBUTOR
3 November 2025
Aberdeen’s life sciences ecosystem: Building innovation in Scotland’s North East
By CONTRIBUTOR
27 October 2025
Putting you in the heart of the rare community – Ring20 Research and Support UK CIO
By CONTRIBUTOR
27 October 2025
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