Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Home
New IN this week
IN the know
INnovation
IN motion
Women IN RARE
INcognito
IN the thick of it
INsights
IN the spotlight
IN the round
IN the loop
IN the pipeline
IN person
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Posts by CONTRIBUTOR
About
CONTRIBUTOR
Putting you in the heart of the rare community – Stichting TAPS Support
By CONTRIBUTOR
25 May 2026
The failure of the ‘usual suspects’ approach to life science recruitment
By CONTRIBUTOR
18 May 2026
Patient centricity is the mission. Patient inclusion is the operating model
By CONTRIBUTOR
18 May 2026
Deborah O’Neil, chief executive officer, NovaBiotics Ltd
By CONTRIBUTOR
11 May 2026
Putting you in the heart of the rare community – CMTUK
By CONTRIBUTOR
4 May 2026
Gemma Gapper, director, Policy & Patient Access UK & Ireland, BioCryst a Neopharmed Gentili company
By CONTRIBUTOR
27 April 2026
Putting you in the heart of the rare community – NCBRS Worldwide Foundation
By CONTRIBUTOR
13 April 2026
Donna M Sullivan, founder and executive director, ElevateRARE
By CONTRIBUTOR
6 April 2026
Elizabeth (Beth) White, chief operating officer and co-founder, Orphan Therapeutics Accelerator, Inc.
By CONTRIBUTOR
23 March 2026
Putting you in the heart of the rare community – Cure Mito Foundation
By CONTRIBUTOR
16 March 2026
Nadine Großmann, vice chair FOP Germany, chair of the IFOPA’s board of directors, vice chair LOUDRARE e. V., PhD candidate rare diseases
By CONTRIBUTOR
2 March 2026
How real-time, real-world data unlocks precision in rare disease marketing
By CONTRIBUTOR
2 March 2026
Putting you in the heart of the rare community – Hope for Hypothalamic Hamartomas UK
By CONTRIBUTOR
2 March 2026
Accessing life-sustaining equipment: a silent systemic gap
By CONTRIBUTOR
23 February 2026
Withdrawal of USAID is fanning winds of entrepreneurial change across Africa
By CONTRIBUTOR
23 February 2026
incognito: the secret life of a…rare disease parent and charity founder
By CONTRIBUTOR
16 February 2026
Lesa Brackbill, director of advocacy, Patient Advocacy Strategies
By CONTRIBUTOR
16 February 2026
1
2
3
4
Next »
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset