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RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Home
IN the know
INnovation
IN motion
Women IN RARE
INcognito
IN the thick of it
INsights
IN the spotlight
IN the round
IN the loop
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IN the know
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Houston we have a problem: NASA-inspired strategies for rare disease
By Michael Wilbur
30 June 2025
Capturing real-world data: “the right data, at the right time, in the right way”
By Michelle Conway
7 June 2025
The future of rare disease policy in England: what the DHSC takeover of NHS England means for patients and progress
By Henry Burkitt
7 June 2025
INnovation
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From stem cells to tiny organs—pioneering advanced testing models
By Shanzeh Mumtaz Ahmed, RARE Revolution
7 July 2025
Epilepsy misdiagnosis rates could be cut by almost 70% with the help of an AI prediction tool
By Julie Penfold, RARE Revolution
23 June 2025
A new method of peptide synthesis may be the key to a greener future for pharma
By Shanzeh Mumtaz Ahmed, RARE Revolution
7 June 2025
“Our goal is to print a kidney in 24 hours”
By Julie Penfold, RARE Revolution
7 June 2025
IN motion
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Gareth Baynam: From songlines to science – Bridging healthcare and Indigenous culture
By Emma Bishop, RARE Revolution
7 July 2025
Dr Kate Cameron on championing diversity in research sampling
By Nicola Miller, RARE Revolution
30 June 2025
Helene Cederroth: Solving the unsolvable – A revolutionary new model for diagnosing rare diseases
By Emma Bishop, RARE Revolution
23 June 2025
Casey McPherson: AlphaRose Therapeutics on doing things differently
By Nicola Miller, RARE Revolution
7 June 2025
Women IN RARE
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Jenny Ousbey of OVID Health
By CONTRIBUTOR
7 June 2025
Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC)
By CONTRIBUTOR
5 June 2025
INcognito
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incognito: the secret life of a…healthcare data CEO
By CONTRIBUTOR
30 June 2025
incognito: the secret life of a…healthcare communications CEO
By CONTRIBUTOR
7 June 2025
IN the thick of it
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Putting you in the heart of the rare community – CLOVES Syndrome Community
By CONTRIBUTOR
7 July 2025
Putting you in the heart of the rare community – National PKU Alliance
By CONTRIBUTOR
23 June 2025
Putting you in the heart of the rare community – Koolen-de Vries Syndrome Foundation
By CONTRIBUTOR
7 June 2025
INsights
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If you or your loved one has participated in a clinical trial, did the endpoints and success measures align with your greatest unmet needs?
By Joe Rumney, RARE Revolution
7 July 2025
If you or your loved one has participated in a clinical trial, were you fully informed about the clinical endpoints and measures of success?
By Joe Rumney, RARE Revolution
30 June 2025
If you or your loved one has participated in a clinical trial, what was your experience?
By Joe Rumney, RARE Revolution
23 June 2025
Are you aware of active clinical trials in your disease area?
By Joe Rumney, RARE Revolution
7 June 2025
IN the loop
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Health and humanity – why holistic care must be a shared industry responsibility
By CONTRIBUTOR
7 July 2025
IN the round
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Solving the unsolvable: a revolutionary new model for diagnosing rare diseases
By Emma Bishop, RARE Revolution
30 June 2025
IN the spotlight
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AlphaRose Therapeutics on doing things differently
By Julie Penfold, RARE Revolution
23 June 2025
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