Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset
Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Home
IN the know
INnovation
IN motion
Women IN RARE
INcognito
IN the thick of it
INsights
IN the spotlight
To use more accessibility options, please use a different browser such as Chrome or Firefox.
IN the know
VIEW MORE >
Capturing real-world data: “the right data, at the right time, in the right way”
By Michelle Conway
7 June 2025
The future of rare disease policy in England: what the DHSC takeover of NHS England means for patients and progress
By Henry Burkitt
7 June 2025
INnovation
VIEW MORE >
Epilepsy misdiagnosis rates could be cut by almost 70% with the help of an AI prediction tool
By Julie Penfold
23 June 2025
A new method of peptide synthesis may be the key to a greener future for pharma
By Shanzeh Mumtaz Ahmed
7 June 2025
“Our goal is to print a kidney in 24 hours”
By Julie Penfold
7 June 2025
IN motion
VIEW MORE >
Helene Cederroth: Solving the unsolvable – A revolutionary new model for diagnosing rare diseases
By Emma Bishop
23 June 2025
Casey McPherson: AlphaRose Therapeutics on doing things differently
By Nicola Miller
7 June 2025
Dr Sara ten Have discusses the environmental impact of peptides in drug development
By Nicola Miller
7 June 2025
Women IN RARE
VIEW MORE >
Jenny Ousbey of OVID Health
By CONTRIBUTOR
7 June 2025
Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC)
By CONTRIBUTOR
5 June 2025
INcognito
VIEW MORE >
incognito: the secret life of a…healthcare communications CEO
By CONTRIBUTOR
7 June 2025
IN the thick of it
VIEW MORE >
Putting you in the heart of the rare community – National PKU Alliance
By CONTRIBUTOR
23 June 2025
Putting you in the heart of the rare community – Koolen-de Vries Syndrome Foundation
By CONTRIBUTOR
7 June 2025
INsights
VIEW MORE >
If you or your loved one has participated in a clinical trial, what was your experience?
By Joe Rumney
23 June 2025
Are you aware of active clinical trials in your disease area?
By Joe Rumney
7 June 2025
Do you know where to find information on active clinical trials?
By Joe Rumney
7 June 2025
IN the spotlight
VIEW MORE >
AlphaRose Therapeutics on doing things differently
By Julie Penfold
23 June 2025
My Account
Sign In
Subscribe
Sign Out
