Putting you in the heart of the rare community – CDKL5 UK
4 August 2025
Beth Vaughan, development and engagement champion,CDKL5 UK

The mission of CDKL5 UK is to provide help and support to individuals and families affected by CDD. Its vision is a world in which CDD and its effects are overcome by way of effective treatments and ultimately, a cure. Here, Beth Vaughan talks about the community’s three biggest unmet needs and main asks of industry.