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Turning the tide for rare disease

Research into diagnostic tests celebrated at international conference

By CONTRIBUTOR
9 October 2024

RARE News

Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR
9 October 2024

Patient voice

Understanding palliative care

By CONTRIBUTOR
9 October 2024

Patient voice

What is pain?

By CONTRIBUTOR
9 October 2024

Charity & advocacy

Join the movement: championing care for rare musculoskeletal conditions

By CONTRIBUTOR
9 October 2024

Medical

Systemic mastocytosis: A new study reveals the perceptions and realities of this rare mast cell disorder

By CONTRIBUTOR
2 October 2024

Industry Insights

Putting patients first?

By CONTRIBUTOR
2 October 2024

Reviews

RARE Reels review: Knox Goes Away

By CONTRIBUTOR
30 September 2024

Patient voice

My unending search for a diagnosis?

By CONTRIBUTOR
25 September 2024

Science & tech

Improved patient finding strategies for rare diseases – a win-win for patients and drug developers

By CONTRIBUTOR
25 September 2024

Charity & advocacy

Haemochromatosis UK helps thousands with life-threatening genetic condition to be diagnosed through postal health kits

By CONTRIBUTOR
18 September 2024

A day in the life

Drunk or disabled? – challenges with ataxia

By CONTRIBUTOR
16 September 2024

Sunday sessions

How reiki, spirituality and faith help me accept life with a rare disease

By CONTRIBUTOR
15 September 2024

Letters

The math is anything but encouraging

By CONTRIBUTOR
12 September 2024

Charity & advocacy

Alex TLC Monthly Research Summaries

By CONTRIBUTOR
12 September 2024

Industry Insights

NICE’s key developments in 2024 in summary

By CONTRIBUTOR
11 September 2024

Charity & advocacy

Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead

By CONTRIBUTOR
10 September 2024
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