Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE caregiving
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Author:
CONTRIBUTOR
Turning the tide for rare disease
Bridging the gap: differing perceptions of generalised myasthenia disease burden
By CONTRIBUTOR
11 December 2024
Reviews
Here’s to baseball, hustlers and believing
By CONTRIBUTOR
9 December 2024
Turning the tide for rare disease
Becker muscular dystrophy patients find hope in building a community
By CONTRIBUTOR
4 December 2024
Turning the tide for rare disease
flok, pioneering patient-led research for inherited metabolic disorders (IMD)
By CONTRIBUTOR
3 December 2024
Turning the tide for rare disease
Bridging the gap: health inequalities and rare diseases
By CONTRIBUTOR
29 November 2024
Turning the tide for rare disease
Rare disease—self-advocacy and getting needs met!
By CONTRIBUTOR
28 November 2024
Charity & advocacy
For George: The MVA Society
By CONTRIBUTOR
20 November 2024
Turning the tide for rare disease
Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end
By CONTRIBUTOR
15 November 2024
Industry Insights
Real-world data in EAPs: makes sense for rare diseases
By CONTRIBUTOR
13 November 2024
Patient voice
My journey with adrenocortical cancer: from diagnosis to advocacy
By CONTRIBUTOR
6 November 2024
Turning the tide for rare disease
The Acromegaly Community: An international haven for people living with acromegaly
By CONTRIBUTOR
1 November 2024
A day in the life
A Day in the Life: living with sickle cell anaemia-Naomi’s story
By CONTRIBUTOR
23 October 2024
Turning the tide for rare disease
Bringing light into the world: the father running over 200 miles for Angelman Syndrome
By CONTRIBUTOR
16 October 2024
A day in the life
A day in the life of a PSPA helpline manager
By CONTRIBUTOR
14 October 2024
Turning the tide for rare disease
Research into diagnostic tests celebrated at international conference
By CONTRIBUTOR
9 October 2024
RARE News
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
By CONTRIBUTOR
9 October 2024
Patient voice
Understanding palliative care
By CONTRIBUTOR
9 October 2024
Posts navigation
Older posts
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset
