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Posts by CONTRIBUTOR
About
CONTRIBUTOR
Dr Martina Rodie, Consultant Neonatologist NHS Greater Glasgow & Clyde and chair of Scottish Government Rare Disease Implementation Board
By CONTRIBUTOR
20 July 2026
Putting you in the heart of the rare community – The Sturge-Weber Foundation
By CONTRIBUTOR
6 July 2026
incognito: the secret life of a…charity CEO
By CONTRIBUTOR
29 June 2026
Charlene Son Rigby, chief executive officer, Global Genes
By CONTRIBUTOR
29 June 2026
Putting you in the heart of the rare community – Wolfram Syndrome UK
By CONTRIBUTOR
15 June 2026
Putting you in the heart of the rare community – Stichting TAPS Support
By CONTRIBUTOR
25 May 2026
The failure of the ‘usual suspects’ approach to life science recruitment
By CONTRIBUTOR
18 May 2026
Patient centricity is the mission. Patient inclusion is the operating model
By CONTRIBUTOR
18 May 2026
Deborah O’Neil, chief executive officer, NovaBiotics Ltd
By CONTRIBUTOR
11 May 2026
Putting you in the heart of the rare community – CMTUK
By CONTRIBUTOR
4 May 2026
Gemma Gapper, director, Policy & Patient Access UK & Ireland, BioCryst a Neopharmed Gentili company
By CONTRIBUTOR
27 April 2026
Putting you in the heart of the rare community – NCBRS Worldwide Foundation
By CONTRIBUTOR
13 April 2026
Donna M Sullivan, founder and executive director, ElevateRARE
By CONTRIBUTOR
6 April 2026
Elizabeth (Beth) White, chief operating officer and co-founder, Orphan Therapeutics Accelerator, Inc.
By CONTRIBUTOR
23 March 2026
Putting you in the heart of the rare community – Cure Mito Foundation
By CONTRIBUTOR
16 March 2026
Putting you in the heart of the rare community – Hope for Hypothalamic Hamartomas UK
By CONTRIBUTOR
2 March 2026
How real-time, real-world data unlocks precision in rare disease marketing
By CONTRIBUTOR
2 March 2026
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