INcognito

incognito: the secret life of a…healthcare communications CEO

By CONTRIBUTOR

7 June 2025

IN the thick of it

Putting you in the heart of the rare community – Koolen-de Vries Syndrome Foundation

By CONTRIBUTOR

7 June 2025

Women IN RARE

Jenny Ousbey of OVID Health

By CONTRIBUTOR

7 June 2025

Women IN RARE

Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC)

By CONTRIBUTOR

5 June 2025

Charity & advocacy

Celebrating the incredible work of nurses for International Nurses Day

By CONTRIBUTOR

12 May 2025

Medical

The value of hope

By CONTRIBUTOR

16 April 2025

Industry Insights

How does industry better navigate the challenges in getting innovation into routine practice

By CONTRIBUTOR

9 April 2025

Patient voice

A family’s fight for sleep: the unseen side of Williams syndrome

By CONTRIBUTOR

9 April 2025

Charity & advocacy

The heart of PPA2: building a global community of hope and advocacy

By CONTRIBUTOR

7 April 2025

Turning the tide for rare disease

We’re not here for symbolic victories—we’re here for action

By CONTRIBUTOR

2 April 2025

Charity & advocacy

Venture philanthropy in rare disease: lessons from the frontlines

By CONTRIBUTOR

2 April 2025

Rare insights

PSPA announces small grant funding for five new research studies

By CONTRIBUTOR

2 April 2025

Rare insights

PSPA charity event to provide support and connection

By CONTRIBUTOR

31 March 2025

RARE News

Giusiana Prosser crowned Ms. Wheelchair NorthWestern USA, advocates for rare disease awareness

By CONTRIBUTOR

26 March 2025

Turning the tide for rare disease

Beyond Rare Disease Day—Improving quality of life for people living with HAE

By CONTRIBUTOR

26 March 2025

RARE caregiving

Rare disease caregiver policy: what, who and when/now

By CONTRIBUTOR

25 March 2025

RARE News

The Muscle Help Foundation charity is on a mission to deliver more transformational experiences to families living with Muscular Dystrophy through a new project working with Children’s Hospices

By CONTRIBUTOR

21 March 2025