INsights

INsights

For healthcare professionals, how important are metrics when measuring the “success” of your Rare Disease Day activities?

By Emma Bishop, RARE Revolution

18 May 2026

INsights

For healthcare professionals, did you see a measurable impact from your Rare Disease Day activities?

By Emma Bishop, RARE Revolution

11 May 2026

INsights

How important are metrics when measuring the “success” of your Rare Disease Day activities?

By Emma Bishop, RARE Revolution

4 May 2026

INsights

Do you find you have better engagement/successful campaigns on Rare Disease Day or on your awareness day?

By Emma Bishop, RARE Revolution

27 April 2026

INsights

Did your increased Rare Disease Day campaign engagement help you reach a different or new audience?

By Emma Bishop, RARE Revolution

20 April 2026

INsights

For advocates: did you see measurable impact from your Rare Disease Day activities?

By Emma Bishop, RARE Revolution

6 April 2026

INsights

Do you have a clear understanding of how to compliantly raise awareness for study/trial awareness to the public?

By Emma Bishop, RARE Revolution

16 March 2026

INsights

Do you have a clear communication plan for study/trial awareness and recruitment?

By Emma Bishop, RARE Revolution

9 March 2026

INsights

Do you understand the difference between study/trial awareness and study/trial recruitment?

By Emma Bishop, RARE Revolution

23 February 2026

INsights

Who do you feel is responsible for study/trial awareness and recruitment?

By Emma Bishop, RARE Revolution

16 February 2026

INsights

How important is partnering with patient groups to the successes within your company?

By Emma Bishop, RARE Revolution

9 February 2026

INsights

Rare Revolution poll finds quality of life matters hugely for rare disease individuals and families, and industry could do more

By Julie Penfold, RARE Revolution

2 February 2026

INsights

What do you feel is the most pressing priority for successful rare disease drug discovery in 2026?

By Emma Bishop, RARE Revolution

2 February 2026

INsights

Following an unsettled year how do you feel about the future of rare disease pipelines?

By Emma Bishop, RARE Revolution

26 January 2026

INsights

Have you been personally impacted by changes in your company during 2025?

By Emma Bishop, RARE Revolution

19 January 2026

INsights

How has the political landscape during 2025 impacted your company/the company you work for?

By Emma Bishop, RARE Revolution

12 January 2026

INsights

Have you, or your loved one, directly benefitted from a change in service, care or treatment options following the completion of a quality of life assessment form?

By Emma Bishop, RARE Revolution

15 December 2025

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