Parkinson’s disease and the silent burden on Black families
April 2026
Dear Editor,
April marks Parkinson’s disease Awareness Month, yet within many Black communities, this condition remains under-recognised, under-discussed and far too often diagnosed too late.
Parkinson’s disease is a progressive neurological disorder that affects movement, coordination and, over time, cognitive and emotional well-being. While it impacts individuals across all backgrounds, research and lived experiences reveal a troubling reality: Black Americans are less likely to be diagnosed early and more likely to face barriers to specialised care.1 This delay in diagnosis can significantly limit treatment options and worsen long-term outcomes.
Equally important—and often overlooked—is the impact on families and caregivers.
In our communities, caregiving is often seen as a responsibility rather than a role that requires support. Loved ones step in without hesitation, balancing work, family obligations and the increasing demands of care. Yet many do so without access to adequate resources, education or emotional support. The result is a quiet strain that affects not only physical health, but mental and emotional well-being as well.
This is why community support systems are essential.
Faith-based organisations, local nonprofits and healthcare providers must work together to create spaces where families can access information, share experiences and receive culturally competent care. We must normalise conversations about Parkinson’s disease so that symptoms such as tremors, stiffness and slowed movement are not dismissed or misunderstood.
We must also encourage proactive health advocacy.
This means asking questions, seeking second opinions and engaging in open, informed conversations with medical providers. Early diagnosis can improve quality of life and empower families to plan, prepare and access appropriate treatments and support services.
At the same time, we cannot ignore the connection between physical health and mental health.
Living with Parkinson’s disease—and caring for someone who does—can lead to increased rates of depression, anxiety and isolation. In communities where mental health remains stigmatised, these challenges often go unaddressed. Advancing health equity requires that we treat the whole person—body, mind and spirit.
Parkinson’s disease may be complex, but our response does not have to be fragmented.
Through awareness, advocacy and community-driven support, we can ensure that Black families are seen, heard and supported throughout their journey.
Sincerely,
Jonathan L Dotson
Executive director at Friendship That Gives
References
[1]https://www.ncbi.nlm.nih.gov/books/NBK607572/#:~:text=Specialty%20Outpatient%20Care&text=Administrative%20data%20from%20the%20Medical,et%20al.%2C%202023)
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