RARE News

RARE News

Global Collaboration Aims for Consensus on Kabuki Syndrome Clinical Management Guidelines

By Joe Rumney

30 April 2025

RARE News

Sickle Cell Disease Association of America names events manager

By admin

29 April 2025

RARE News

Graeme Souness to swim the English Channel, there and back, to be the difference for EB

By admin

29 April 2025

RARE News

UK charity releases new funding for research into PSP & CBD

By admin

25 April 2025

RARE News

NephCure celebrates second annual APOL1 Kidney Disease Awareness Day on April 29, 2025

By admin

23 April 2025

RARE News

Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community

By admin

23 April 2025

RARE News

Save the date: 1st International Clinical Care Symposium on spinal muscular atrophy.

By admin

23 April 2025

RARE News

National charity expands helpline support in Wales

By admin

17 April 2025

RARE News

Join as a trustee and help transform the future for children with Schinzel-Giedion syndrome

By admin

3 April 2025

RARE News

Giusiana Prosser crowned Ms. Wheelchair NorthWestern USA, advocates for rare disease awareness

By CONTRIBUTOR

26 March 2025

RARE News

The Muscle Help Foundation charity is on a mission to deliver more transformational experiences to families living with Muscular Dystrophy through a new project working with Children’s Hospices

By CONTRIBUTOR

21 March 2025

RARE News

CureDuchenne raises more than $1.1 million at Napa in Newport and announces landmark partnership with Children’s Hospital of Orange County

By CONTRIBUTOR

18 March 2025

RARE News

Pamela Price returns to Los Angeles Marathon as official running reporter

By CONTRIBUTOR

18 March 2025

RARE News

Butterfly mural symbolising rare endocrine condition unveiled at key Harrogate conference

By CONTRIBUTOR

11 March 2025

RARE News

CureDuchenne and Children’s Hospital of Orange County partner to bring world-class care to families with Duchenne muscular dystrophy

By admin

7 March 2025

RARE News

Unlock the future of pharma marketing: the 8th Annual Pharma Omnichannel Excellence Conference

By admin

5 March 2025

RARE News

Exposing the gaps in screening and care for hereditary brain aneurysms

By admin

3 March 2025

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