Press releases

Press releases

SpringWorks Therapeutics announces FDA approval of Ogsiveo™ (nirogacestat) as the first and only treatment for adults with desmoid tumours

By admin

8 December 2023

Press releases

Worthing couple take part in cooking challenge supported by celebrity chefs to raise funds for Muscular Dystrophy

By admin

8 December 2023

Press releases

CureDuchenne raises more than $1.3 million at ninth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

By admin

16 November 2023

Press releases

Exciting news: $100,000 in funding for Myhre syndrome research projects

By admin

7 November 2023

Press releases

Rare Stories initiative illuminates lives in Northern Ireland rare disease community

By admin

2 November 2023

Press releases

Pilbara Rare Care Centre to open in remote Western Australia

By Rebecca Pender

31 October 2023

Press releases

CureDuchenne welcomes new executive director, vice president of medical affairs, and board members

By admin

25 October 2023

Press releases

Arthur Suckow, former co-founder and chief executive officer of DTx Pharma, joins CMT Research Foundation board of directors

By admin

5 October 2023

Press releases

NHL all-star Ryan Getzlaf and CureDuchenne raise more than $500,000 at 12th Annual Getzlaf Golf Shootout

By admin

29 September 2023

Press releases

CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity

By admin

28 September 2023

Press releases

Sickle Cell Disease Association of America holds national convention

By admin

27 September 2023

Press releases

World Orphan Drug Congress Europe 2023

By admin

27 September 2023

Press releases

Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK

By admin

26 September 2023

Press releases

Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge

By admin

22 September 2023

Press releases

CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers

By admin

21 September 2023

Press releases

EveryLife Foundation study measures economic impact of delayed diagnosis of rare diseases

By admin

18 September 2023

Press releases

Uncommon knowledge

By admin

13 September 2023

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