Press releases

Press releases

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By Joe Rumney

1 February 2023

Press releases

Raising awareness and celebrating people with craniofacial differences

By Rebecca Pender

24 January 2023

Editor's picks

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

By Rebecca Pender

23 January 2023

Press releases

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By Joe Rumney

20 January 2023

Press releases

Know your sickle cell trait status, according to new campaign

By Joe Rumney

20 January 2023

Press releases

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By Joe Rumney

19 January 2023

Press releases

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

By Rebecca Pender

18 January 2023

Press releases

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

By Rebecca Pender

6 January 2023

Press releases

The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community

By Rebecca Pender

3 January 2023

Press releases

Blueprint Medicines reports clinical data highlighting leadership in developing targeted treatment options for patients with systemic mastocytosis

By Rebecca Pender

22 December 2022

Press releases

Zynerba Pharmaceuticals announces publication of data from phase 3 CONNECT-FX study of Zygel™ in the Journal of Neurodevelopmental Disorders

By Rebecca Pender

20 December 2022

Press releases

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

By Rebecca Pender

8 December 2022

Press releases

NFL players spotlight Sickle Cell Disease Association of America

By Rebecca Pender

7 December 2022

Press releases

Winners of Gene People Awards 2022 announced

By Rebecca Pender

16 November 2022

Press releases

CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy

By Rebecca Pender

20 October 2022

Press releases

World Duchenne Organization announces Accredited Duchenne Centers Programme

By Rebecca Pender

7 October 2022

Press releases

Sickle Cell Disease Association holds 50th annual national convention virtually

By Rebecca Pender

5 October 2022

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