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RARE Primary Immunodeficiency
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Press releases

Press releases

Winners of Gene People Awards 2022 announced

By rpender
16 November 2022

Press releases

CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy

By rpender
20 October 2022

Press releases

World Duchenne Organization announces Accredited Duchenne Centers Programme

By rpender
7 October 2022

Press releases

Sickle Cell Disease Association holds 50th annual national convention virtually

By rpender
5 October 2022

Press releases

American Kidney Fund’s Unknown Causes of Kidney Disease Coalition set to advance policies on rare kidney diseases

By rpender
26 September 2022

Events

The Dash Alliance and RARE Revolution Magazine – levelling up for RARE

By rpender
21 September 2022

Press releases

The 2022 Jeans For Genes grant programme is now open and inviting applications

By rpender
1 September 2022

Press releases

Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month

By rpender
31 August 2022

Press releases

Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).

By rpender
22 August 2022

Press releases

Parents of Children with Narcolepsy Invited to Participate in Registry

By rpender
8 August 2022

Press releases

Shining the light on eosinophilic diseases

By rpender
5 August 2022

Charity & advocacy

ANGEL AID Unveils Raregivers™ Global Mental Health Initiative for Caregivers, Patients and Professionals

By rpender
12 July 2022

Press releases

BioCryst new long-term study data and an independent 6 month follow up of patients enrolled in the UK Early Access to Medicines Scheme (EAMS) demonstrates the long-term impact of prophylactic Orladeyo® (berotralstat) on HAE

By rpender
5 July 2022

Charity partner news

Teddington Trust and XPSG – coming together with a new identity for a new impact driven mission

By rpender
1 July 2022

Press releases

Gene People celebrates their first anniversary!

By rpender
6 June 2022

Press releases

CureDuchenne hosts conversation with Pfizer to discuss opening of first U.S. sites in phase 3 trial of investigational gene therapy for ambulatory patients with Duchenne muscular dystrophy

By rpender
26 May 2022

Press releases

Lace up to raise awareness of PSP and CBD: PSPA relaunches fun campaign to raise awareness of rare brain conditions progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD)

By rpender
23 May 2022
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