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Charity & advocacy
Charity & advocacy
The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments
By rpender
10 March 2022
Charity & advocacy
Living with muscular dystrophy in Nepal
By rpender
13 December 2021
Charity & advocacy
A new UK charity launches to support those impacted by Glut1DS
By rpender
12 November 2021
Charity & advocacy
October is CMT awareness month in the UK
By rpender
22 October 2021
Charity & advocacy
Applications open for Duchenne Patient Academy 2021
By rpender
18 October 2021
Charity & advocacy
Celebrating a year of mental health support for men affected by rare conditions!
By rpender
30 June 2021
Charity & advocacy
Why care for carers?
By rpender
31 May 2021
Charity & advocacy
My journey with multiple sclerosis and advocacy
By rpender
28 May 2021
Charity & advocacy
Personal circumstances lead the way to a passionate career in nephrology research
By rpender
11 October 2020
Charity & advocacy
PTC Therapeutics’ 2020 STRIVE awards for Duchenne muscular dystrophy recognise four patient advocacy organisations
By rpender
30 September 2020
Charity & advocacy
Scottish based liver charity PBC foundation celebrates success of its first global online event
By rpender
29 September 2020
Charity & advocacy
CMT Research Foundation fighting to shorten the time to diagnosis and put CMT on the radar of pharma
By rpender
24 September 2020
Charity & advocacy
A race against time
By rpender
18 August 2020
Charity & advocacy
The Albinism Fellowship UK and Ireland are proud to support a campaign to end discrimination within international blind sport
By rpender
5 August 2020
Charity & advocacy
“I Stay Home for RARE” financial assistance campaign launched by Living in the Light.
By rpender
8 July 2020
Charity & advocacy
Kawasaki disease UK
By rpender
1 July 2020
Charity & advocacy
Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease
By rpender
29 June 2020
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