Charity & advocacy

Charity & advocacy

A new UK charity launches to support those impacted by Glut1DS

By rpender

12 November 2021

Charity & advocacy

October is CMT awareness month in the UK

By rpender

22 October 2021

Charity & advocacy

Applications open for Duchenne Patient Academy 2021

By rpender

18 October 2021

Charity & advocacy

Celebrating a year of mental health support for men affected by rare conditions!

By rpender

30 June 2021

Charity & advocacy

Why care for carers?

By rpender

31 May 2021

Charity & advocacy

My journey with multiple sclerosis and advocacy

By rpender

28 May 2021

Charity & advocacy

Personal circumstances lead the way to a passionate career in nephrology research

By rpender

11 October 2020

Charity & advocacy

PTC Therapeutics’ 2020 STRIVE awards for Duchenne muscular dystrophy recognise four patient advocacy organisations

By rpender

30 September 2020

Charity & advocacy

Scottish based liver charity PBC foundation celebrates success of its first global online event

By rpender

29 September 2020

Charity & advocacy

CMT Research Foundation fighting to shorten the time to diagnosis and put CMT on the radar of pharma

By rpender

24 September 2020

Charity & advocacy

A race against time

By rpender

18 August 2020

Charity & advocacy

The Albinism Fellowship UK and Ireland are proud to support a campaign to end discrimination within international blind sport

By rpender

5 August 2020

Charity & advocacy

“I Stay Home for RARE” financial assistance campaign launched by Living in the Light.

By rpender

8 July 2020

Charity & advocacy

Kawasaki disease UK

By rpender

1 July 2020

Charity & advocacy

Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease

By rpender

29 June 2020

Charity & advocacy

Nystagmus awareness day – 20 June 2020

By rpender

17 June 2020

Charity & advocacy

Welcome new boost for mums and dads of young children with albinism

By rpender

11 June 2020

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