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Meet the team

CEO

Rebecca Stewart

Rebecca is our co-founder and brings 30 years of client care experience and ethos to guide our dedicated team. With a passion for people and building networks, Rebecca has channeled a community approach to realising meaningful, accessible resources and the power of education through compelling story telling.Through the development of the company’s “safe hands” approach, Rebecca is committed to steering responsible and sensitive journalism and is active in driving this message forward.Rebecca is also co-founder and trustee of Teddington Trust, a charity supporting those with the ultra-rare condition xeroderma pigmentosum, supporting people internationally with vital protective equipment, education and health and well-being programmes.

Editor-in-Chief

Nicola Miller

Nicola is our uber creative co-founder and editor-in-chief. With a strong background in design and a passion for writing, Nicola is the driving force behind our creative vision, and uses her strategic experience in large-scale project planning to oversee our varied work, including RARE Youth Revolution.Nicola is co-founder and trustee of the charity Teddington Trust, volunteering her time to drive forward their mission—supporting families living with the ultra-rare condition xeroderma pigmentosum. Nicola is also author of the award-winning rare disease children’s book series, Little Ted. When not dedicating her time to rare disease, she is raising her two gorgeous sons, and is a rare mama herself.

Business Development Associate

David Rose

David is our very suave and never-lost-for-words business development associate. He is a business economics graduate, who was diagnosed with occipital horn syndrome in 2016. David is the only known person in the UK with this syndrome. He is passionate about sharing his health journey, in the form of writing, advocacy and public speaking and also working with clients to share their journeys and raise their profiles through communication strategies. David is a keen Leyton Orient football fan, who regularly goes to games with his dad. In his spare time, you'll often find him planning his next adventure.

Design and Editorial Associate

Emma Bishop

Emma’s background is in the arts, having completed a diploma in foundation studies in Art and Design and an MA in the history of art and design. She has previously worked in retail merchandising for various fashion brands. Emma’s creative talents, both in design and writing, are always innovative and perceptive to her client’s brief. Emma has a love of painting and sketching, but these days her artistic endeavors consist more of potato printing and making lolly stick people with her children, than painting watercolours!

Editorial Assistant

Charlotte Cooper

Charlotte Cooper has an autoimmune condition, which she was diagnosed with during her undergraduate degree at the University of Plymouth, where she studied publishing. Charlotte went on to do a master’s in publishing. During her MA, Charlotte undertook a work placement at Rare Revolution Magazine, which led to a part-time position while she completed her studies, focusing on neurodiversity representation in literature. Having completed her MA, Charlotte now works full-time here at Rare Revolution Magazine as our Editorial Assistant who is never without a coffee beside her. When Charlotte is not working, she loves being out in nature on countryside walks in her Devonshire hometown or on Dartmoor, and likes to spend her evenings reading magical realism or crime novels.

Team and Communities Administrator

Rebecca Pender

Rebecca, also known as Becky, lives in Glasgow and, among other things, is mum to four young girls. Her eldest daughter lives with not one but two rare genetic conditions making her the only child worldwide with both. With a background of over 13 years in customer service, Becky loves nothing more than curating relationships with like-minded people across the world, making her the perfect fit to look after our charity and media partners as well as our social media channels. When she's not working, she loves a good box set or making memories with her daughters. You can usually find her with a cup of coffee in hand.

RARE Youth Co-ordinator

James Brooks

James is our Youth Coordinator. He graduated from Roehampton University with a degree in Journalism and Creative Writing. At 3 years old, he was diagnosed with Niemann-Pick disease Type B, and is a patient ambassador for NPUK. James uses his passion for writing and rare disease at RARE Youth to help raise awareness for and empower young people like himself who are affected by rare disease. When he’s not working, James enjoys skiing and has a love of football. You can often find him at Vicarage Road to support Watford FC.
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