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Author:
admin
RARE News
102,000 newborns could be saved every year if proper screening were in place – celebrating International Neonatal Screening Day
By admin
28 June 2023
RARE News
Rare Care Centre Australia impact report
By admin
26 June 2023
RARE News
Pioneering polar adventurer and charity CEO of The Muscle Help Foundation charity to be awarded MBE for services to people with muscular dystrophy
By admin
26 June 2023
RARE News
An important milestone for the Duchenne community
By admin
23 June 2023
RARE News
Charity survey shows 60% of people with PSP and CBD are misdiagnosed
By admin
17 June 2023
RARE News
Cure Mito Foundation launches resource on Leigh syndrome
By admin
9 June 2023
RARE News
DNA sequencing in newborns reveals years of actionable findings for infants and families
By admin
5 June 2023
RARE News
Global Genes’ RARE-X issues open call to researchers to participate in the Inaugural Xcelerate RARE Challenge
By admin
31 May 2023
RARE News
American Kidney Fund will host cystinosis camp as part of national virtual camp for children and teens with kidney disease
By admin
25 May 2023
RARE News
The Muscle Help Foundation launches 20th anniversary celebrations
By admin
16 May 2023
RARE News
Global Genes announces partnership with CureJM Foundation to expand support in rare disease community for mental health-related challenges
By admin
16 May 2023
RARE News
The Twin Run – supporting high-risk multiple birth parents and twin research
By admin
12 May 2023
RARE News
CureDuchenne partners with PicnicHealth to advance research and simplify patient experience by incorporating electronic health records into data-integrated biobank
By admin
5 May 2023
RARE News
Specialty pharma expert adopts name of global parent to reflect breadth of offer that brings a rare and special perspective to the market
By admin
2 May 2023
RARE News
PIP-UK Poland syndrome charity launches new podcast series: What about PS? A Poland Syndrome Podcast
By admin
30 April 2023
RARE News
Survey shows 60% of people living with progressive supranuclear palsy and corticobasal degeneration are initially misdiagnosed
By admin
28 April 2023
RARE News
What is Quality of Life (QoL) for people living with a rare disease?
By admin
24 April 2023
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