RARE News

Get Ready to #ShowYourStripes for Rare Disease Day 2024 29th February: the rarest day of the year!

By admin

1 February 2024

Patient voice

If you want to make God laugh, tell him about your plans

By admin

31 January 2024

RARE News

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin

31 January 2024

RARE News

Sickle Cell Disease Association of America Inc. appoints two to board

By admin

29 January 2024

RARE News

American Kidney Fund announces April 30 as the first annual APOL1-mediated kidney disease (AMKD) awareness day

By admin

26 January 2024

Science & tech

Faster diagnosis for patients with rare diseases

By admin

24 January 2024

RARE News

REGISTER NOW for M4RD’s ANNUAL SYMPOSIUM

By admin

23 January 2024

RARE News

New research puts the spotlight on tube feeding

By admin

23 January 2024

RARE News

CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement

By admin

23 January 2024

Rare insights

Rare Disease Summit, March 19-21 in Philadelphia, PA, United States

By admin

22 January 2024

RARE News

Project CASK Grant Program now accepting applications

By admin

18 January 2024

RARE News

International Kawasaki Disease Awareness Day: Special Podcast to Illuminate the Importance of Awareness

By admin

17 January 2024

RARE News

Benchmarking report published on “Early and Expanded Access Pathways in Ukraine, Poland, & the Baltic States”

By admin

10 January 2024

RARE News

UK charity PSPA raising awareness in news-style programme

By admin

10 January 2024

Industry Insights

UK report calls for more government input to make cell and gene therapies a true health system priority

By admin

9 January 2024

RARE News

IGA celebrates 30th anniversary in 2024

By admin

9 January 2024

Charity & advocacy

Davis Out of the Unknown: a family’s life with Koolen-de Vries Syndrome and their search for treatment

By admin

3 January 2024