RARE News

Rare Stories initiative illuminates lives in Northern Ireland rare disease community

By admin

2 November 2023

RARE News

Pilbara Rare Care Centre to open in remote Western Australia

By admin

31 October 2023

RARE News

CureDuchenne welcomes new executive director, vice president of medical affairs, and board members 

By admin

25 October 2023

RARE News

Arthur Suckow, former co-founder and chief executive officer of DTx Pharma, joins CMT Research Foundation board of directors

By admin

5 October 2023

RARE News

NHL all-star Ryan Getzlaf and CureDuchenne raise more than $500,000 at 12th Annual Getzlaf Golf Shootout

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29 September 2023

RARE News

CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity

By admin

28 September 2023

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Sickle Cell Disease Association of America holds national convention

By admin

27 September 2023

RARE News

World Orphan Drug Congress Europe 2023

By admin

27 September 2023

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Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK

By admin

26 September 2023

RARE News

Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge

By admin

22 September 2023

RARE News

CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers

By admin

21 September 2023

RARE News

EveryLife Foundation study measures economic impact of delayed diagnosis of rare diseases

By admin

18 September 2023

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Uncommon knowledge

By admin

13 September 2023

RARE News

W. David Arnold, MD joins CMT Research Foundation Advisory Board

By admin

7 September 2023

RARE News

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

By admin

5 September 2023

RARE News

Dyne Therapeutics and CureDuchenne partner to give the gift of mobility to two local families

By admin

30 August 2023

RARE News

Million Dollar Bike Ride pilot grant program request for applications

By admin

24 August 2023