RARE News

£1.5 million new fund launched to ‘Help the Heart’

By admin

27 February 2024

RARE News

CureDuchenne hosts “Champions in Miami” event on March 9 to help find a cure for Duchenne muscular dystrophy

By admin

23 February 2024

RARE News

CMT Research Foundation partners to advance study of CMT type 1J by Dr Stephan Zuchner

By admin

21 February 2024

RARE News

Patients as Partners in Clinical Research Conference 2024

By admin

19 February 2024

RARE News

MEF2C Foundation & MUSC launch program to develop MEF2C therapeutics

By admin

9 February 2024

RARE News

National Tay-Sachs & Allied Diseases Association hosts first of its kind drug development meeting for GM2

By admin

2 February 2024

RARE News

Get Ready to #ShowYourStripes for Rare Disease Day 2024 29th February: the rarest day of the year!

By admin

1 February 2024

RARE News

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin

31 January 2024

RARE News

Sickle Cell Disease Association of America Inc. appoints two to board

By admin

29 January 2024

RARE News

American Kidney Fund announces April 30 as the first annual APOL1-mediated kidney disease (AMKD) awareness day

By admin

26 January 2024

RARE News

REGISTER NOW for M4RD’s ANNUAL SYMPOSIUM

By admin

23 January 2024

RARE News

New research puts the spotlight on tube feeding

By admin

23 January 2024

RARE News

CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement

By admin

23 January 2024

Rare insights

Rare Disease Summit, March 19-21 in Philadelphia, PA, United States

By admin

22 January 2024

RARE News

Project CASK Grant Program now accepting applications

By admin

18 January 2024

RARE News

International Kawasaki Disease Awareness Day: Special Podcast to Illuminate the Importance of Awareness

By admin

17 January 2024

RARE News

Benchmarking report published on “Early and Expanded Access Pathways in Ukraine, Poland, & the Baltic States”

By admin

10 January 2024