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RARE Siblings
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Author: CONTRIBUTOR

RARE caregiving

The barista and the quiltmaker: life lessons from strangers

By CONTRIBUTOR
5 July 2023

A day in the life

A day in the life: Josiah’s diagnosis with familial cold autoinflammatory syndrome

By CONTRIBUTOR
28 June 2023

Reviews

RARE Reads: Thrive Rare: Embracing The Uniqueness Within

By CONTRIBUTOR
27 June 2023

Charity & advocacy

Dee and Nadia’s journey with Kawasaki disease

By CONTRIBUTOR
21 June 2023

Charity & advocacy

Global Genes and Cure JM Foundation: expanding mental health support for the rare disease community

By CONTRIBUTOR
7 June 2023

Patient voice

Together—every step

By CONTRIBUTOR
31 May 2023

A day in the life

A day in the life: Cathy Moughton, PSPA helpline care navigator

By CONTRIBUTOR
24 May 2023

Charity & advocacy

GACI Global: circulating hope for families affected by a rare genetic disease that primarily affects the circulatory system 

By CONTRIBUTOR
17 May 2023

Patient voice

Generalised arterial calcification of infancy (GACI): Ruben’s story

By CONTRIBUTOR
17 May 2023

Turning the tide for rare disease

Changing the landscape for the differently-abled community one smile at a time. Dr Sai Kaustuv is our RARE Inspiration

By CONTRIBUTOR
10 May 2023

Industry Insights

COVID: Three years on—what has changed?

By CONTRIBUTOR
3 May 2023

A day in the life

A day in the life with hypokalemic periodic paralysis: Ralph Berthiaume

By CONTRIBUTOR
1 May 2023

Turning the tide for rare disease

Arianna’s Magic Boots: stamping out a taboo in children’s books

By CONTRIBUTOR
26 April 2023

Patient voice

Raymond: A “ray of sunshine” living with VAMP2

By CONTRIBUTOR
21 April 2023

Science & tech

Engaging patients to shape the research of the future

By CONTRIBUTOR
21 April 2023

Charity & advocacy

Ableism can hurt your confidence. Learn to use your voice to regain your personal power!

By CONTRIBUTOR
19 April 2023

Turning the tide for rare disease

FOP Friends: celebrating a decade of support for the fibrodysplasia ossificans progressiva community

By CONTRIBUTOR
19 April 2023
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