Patient voice

Let’s talk about sex, baby!

By CONTRIBUTOR

25 October 2023

Charity & advocacy

Do you work for a compassionate employer?

By CONTRIBUTOR

18 October 2023

Industry Insights

Together4RD: making ERN-industry collaboration a key pillar of the future in the rare disease research ecosystem

By CONTRIBUTOR

11 October 2023

A day in the life

A day in the life: navigating our way through the labyrinth of a newly discovered disease

By CONTRIBUTOR

9 October 2023

Patient voice

Joshua Ruff: a journey of transformation through faith, family and farming

By CONTRIBUTOR

4 October 2023

Charity & advocacy

A Rare Find: upcoming comedy short wants to create conversation around newborn screening

By CONTRIBUTOR

27 September 2023

Industry Insights

Living well with a rare disease: are we really supporting our community to achieve this?

By CONTRIBUTOR

25 September 2023

Patient voice

Living with cold agglutinin disease: Jörg’s story

By CONTRIBUTOR

25 September 2023

Charity & advocacy

Mitochondrial disease awareness week: let’s move the needle towards effective treatments and cures

By CONTRIBUTOR

20 September 2023

Reviews

RARE Reads: The CMMRD book: a mismatch memoir and guide

By CONTRIBUTOR

20 September 2023

A day in the life

A day in the life: a glimpse into my life living with scleroderma

By CONTRIBUTOR

15 September 2023

Patient voice

The physical, mental, and emotional toll of Charcot-Marie-Tooth disease: Joe Hogan’s story

By CONTRIBUTOR

13 September 2023

Medical

Transitioning successfully from paediatric to adult care in Duchenne muscular dystrophy

By CONTRIBUTOR

6 September 2023

Reviews

RARE Reads: Helix of Love

By CONTRIBUTOR

30 August 2023

Turning the tide for rare disease

Alpha-1: best practices for testing for this and other late-onset genetic diseases

By CONTRIBUTOR

30 August 2023

Turning the tide for rare disease

Life in the slow lane: finding strength after ataxia diagnosis

By CONTRIBUTOR

23 August 2023

Science & tech

Marie Curie: the inspiring legacy of a great woman of science and our RARE inspiration

By CONTRIBUTOR

16 August 2023