Industry Insights

The ABPI Code Partnership events: a step towards better partnerships?

By CONTRIBUTOR

12 July 2023

Science & tech

LifeArc announces investment of more than £100 million into rare disease research by 2030

By CONTRIBUTOR

6 July 2023

RARE caregiving

The barista and the quiltmaker: life lessons from strangers

By CONTRIBUTOR

5 July 2023

A day in the life

A day in the life: Josiah’s diagnosis with familial cold autoinflammatory syndrome

By CONTRIBUTOR

28 June 2023

Reviews

RARE Reads: Thrive Rare: Embracing The Uniqueness Within

By CONTRIBUTOR

27 June 2023

Charity & advocacy

Dee and Nadia’s journey with Kawasaki disease

By CONTRIBUTOR

21 June 2023

Charity & advocacy

Global Genes and Cure JM Foundation: expanding mental health support for the rare disease community

By CONTRIBUTOR

7 June 2023

Patient voice

Together—every step

By CONTRIBUTOR

31 May 2023

A day in the life

A day in the life: Cathy Moughton, PSPA helpline care navigator

By CONTRIBUTOR

24 May 2023

Charity & advocacy

GACI Global: circulating hope for families affected by a rare genetic disease that primarily affects the circulatory system 

By CONTRIBUTOR

17 May 2023

Patient voice

Generalised arterial calcification of infancy (GACI): Ruben’s story

By CONTRIBUTOR

17 May 2023

Turning the tide for rare disease

Changing the landscape for the differently-abled community one smile at a time. Dr Sai Kaustuv is our RARE Inspiration

By CONTRIBUTOR

10 May 2023

Industry Insights

COVID: Three years on—what has changed?

By CONTRIBUTOR

3 May 2023

A day in the life

A day in the life with hypokalemic periodic paralysis: Ralph Berthiaume

By CONTRIBUTOR

1 May 2023

Turning the tide for rare disease

Arianna’s Magic Boots: stamping out a taboo in children’s books

By CONTRIBUTOR

26 April 2023

Patient voice

Raymond: A “ray of sunshine” living with VAMP2

By CONTRIBUTOR

21 April 2023

Science & tech

Engaging patients to shape the research of the future

By CONTRIBUTOR

21 April 2023