Rare insights

Rare insights

National charity expands helpline support in Wales

By Becky Pender

17 April 2025

Patient voice

The value of hope

By CONTRIBUTOR

16 April 2025

Industry Insights

How does industry better navigate the challenges in getting innovation into routine practice

By CONTRIBUTOR

9 April 2025

Patient voice

A family’s fight for sleep: the unseen side of Williams syndrome

By CONTRIBUTOR

9 April 2025

Charity & advocacy

The heart of PPA2: building a global community of hope and advocacy

By CONTRIBUTOR

7 April 2025

RARE News

Join as a trustee and help transform the future for children with Schinzel-Giedion syndrome

By admin

3 April 2025

Turning the tide for rare disease

We’re not here for symbolic victories—we’re here for action

By CONTRIBUTOR

2 April 2025

Charity & advocacy

Venture philanthropy in rare disease: lessons from the frontlines

By CONTRIBUTOR

2 April 2025

Rare insights

PSPA announces small grant funding for five new research studies

By CONTRIBUTOR

2 April 2025

Rare insights

PSPA charity event to provide support and connection

By CONTRIBUTOR

31 March 2025

RARE News

Giusiana Prosser crowned Ms. Wheelchair NorthWestern USA, advocates for rare disease awareness

By CONTRIBUTOR

26 March 2025

Turning the tide for rare disease

Beyond Rare Disease Day—Improving quality of life for people living with HAE

By CONTRIBUTOR

26 March 2025

RARE caregiving

Rare disease caregiver policy: what, who and when/now

By CONTRIBUTOR

25 March 2025

RARE News

The Muscle Help Foundation charity is on a mission to deliver more transformational experiences to families living with Muscular Dystrophy through a new project working with Children’s Hospices

By CONTRIBUTOR

21 March 2025

RARE News

CureDuchenne raises more than $1.1 million at Napa in Newport and announces landmark partnership with Children’s Hospital of Orange County

By CONTRIBUTOR

18 March 2025

RARE News

Pamela Price returns to Los Angeles Marathon as official running reporter

By CONTRIBUTOR

18 March 2025

Sunday sessions

In His hands

By CONTRIBUTOR

16 March 2025

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