Rare insights

Rare insights

5th International Scientific Congress on Spinal Muscular Atrophy (SMA)

By admin

2 March 2026

Rare insights

Living with anhidrosis taught me resilience, purpose and the power of faith to overcome adversity

By CONTRIBUTOR

2 March 2026

Rare insights

OpalMedica launches patient platform to help shape the future of rare disease detection

By admin

28 February 2026

Rare insights

RDCom: The new clinical AI that triples diagnostic effectiveness in Rare Diseases

By admin

28 February 2026

Rare insights

Rare Disease Day 2026 highlights global inequities and amplifies youth voices in call for lasting change

By Becky Pender, RARE Revolution

27 February 2026

Rare insights

The inflection point for rare diseases – driving a new era of co-created innovation

By CONTRIBUTOR

27 February 2026

Rare insights

From no options to new hope: How science, partnership and persistence are driving progress towards treatments for CASK

By CONTRIBUTOR

26 February 2026

Rare insights

How evidence and patient realities can help us to rethink the future of MG care

By CONTRIBUTOR

25 February 2026

Rare insights

How can AI amplify patient voices to improve rare disease communications?

By CONTRIBUTOR

24 February 2026

Rare insights

Charity training aims to bridge care gap for rare neurological conditions

By admin

23 February 2026

Rare insights

“The Great Democratisation”. How AI is levelling the playing field for patients

By CONTRIBUTOR

18 February 2026

Rare insights

The mountain still calls

By CONTRIBUTOR

16 February 2026

Rare insights

American Behçet’s Disease Association’s Pamela Price celebrates Rare Disease Day by defying the odds as 5-time ASICS Los Angeles Marathon host

By admin

13 February 2026

Rare insights

New report released highlights the neglect of hereditary brain aneurysms and calls for urgent action to transform care

By admin

13 February 2026

Rare insights

Living rare: finding my voice with diffuse systemic scleroderma

By CONTRIBUTOR

11 February 2026

Rare insights

Global Liver Institute’s fifth #RareAware campaign puts early detection at the centre of care

By admin

9 February 2026

Rare insights

CureDuchenne announces educational events for Duchenne and Becker muscular dystrophy families and caregivers

By admin

9 February 2026

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