Rare insights

Rare insights

Top North American aortic-awareness organisations stand together to save lives during Aortic Dissection Awareness Week (September 14 – 20, 2025)

By admin

15 September 2025

Rare insights

Fundraiser turns to music to raise awareness of rare disease

By admin

15 September 2025

Rare insights

Transforming patient support for people living with rare diseases

By CONTRIBUTOR

15 September 2025

Rare insights

Finalists revealed for Little Moments Matter Awards celebrating professionals supporting those with rare form of epilepsy

By admin

12 September 2025

Rare insights

Vascular Voice Network launches to unite organisations across the vascular health landscape

By admin

12 September 2025

Rare insights

ARRE Foundation launches new website for ASXL community

By admin

10 September 2025

Rare insights

Rare diseases become “not-so-rare” within a global R&D and treatment strategy

By Paul Kidwell

10 September 2025

Rare insights

Sickle Cell Disease Association recognises Sickle Cell Awareness Month 2025

By Becky Pender, RARE Revolution

4 September 2025

Rare insights

Never give up

By CONTRIBUTOR

3 September 2025

Rare insights

Unlocking the genetics of brain aneurysms: world-leading new UK study aims to transform NHS approach to a potentially inherited silent killer

By admin

2 September 2025

Rare insights

Epilepsy seizure alert dog is credited with owner being seizure-free for five years

By CONTRIBUTOR

27 August 2025

Rare insights

Making a difference in the world as someone with a rare condition

By CONTRIBUTOR

25 August 2025

Rare insights

Leave no one behind

By CONTRIBUTOR

20 August 2025

Rare insights

Simons Searchlight – 15-years of genetic discovery

By Emma Bishop, RARE Revolution

20 August 2025

Rare insights

The heartbroken parents of a special little boy who ‘touched so many people’s lives’ have pledged to raise over £100,000 in his memory for the new Cambridge Children’s Hospital

By admin

18 August 2025

Rare insights

Reasons to be cheerful?

By Nicola Redfern

13 August 2025

Rare insights

Living with acrodysostosis type 1: Jordan’s story

By Becky Pender, RARE Revolution

11 August 2025

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