Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset
Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
RARE Siblings
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE caregiving
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
RARE Siblings
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Medical
Medical
Cure the cycle
By Becky Pender
15 May 2025
RARE News
NephCure to recognise IgA nephropathy (IgAN) awareness day on May 14, 2025
By admin
14 May 2025
Industry Insights
NICE’s highly specialised technologies (HST) criteria: a summary and impact analysis
By admin
14 May 2025
Charity & advocacy
Celebrating the incredible work of nurses for International Nurses Day
By CONTRIBUTOR
12 May 2025
Turning the tide for rare disease
Life wants me here!
By admin
9 May 2025
RARE caregiving
The caregiver engine steers accelerated rare cancer trials
By admin
7 May 2025
RARE News
Charity launches appeal to increase research into PSP and CBD
By admin
5 May 2025
RARE News
Global collaboration aims for consensus on Kabuki syndrome clinical management guidelines
By Joe Rumney
30 April 2025
RARE News
Sickle Cell Disease Association of America names events manager
By admin
29 April 2025
RARE News
Graeme Souness to swim the English Channel, there and back, to be the difference for EB
By admin
29 April 2025
Turning the tide for rare disease
This isn’t just a day. It’s a movement. Undiagnosed Day 2025: why action can’t wait
By admin
29 April 2025
RARE News
UK charity releases new funding for research into PSP & CBD
By admin
25 April 2025
RARE News
NephCure celebrates second annual APOL1 Kidney Disease Awareness Day on April 29, 2025
By admin
23 April 2025
RARE News
Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community
By admin
23 April 2025
RARE News
Save the date: 1st International Clinical Care Symposium on spinal muscular atrophy.
By admin
23 April 2025
RARE News
National charity expands helpline support in Wales
By admin
17 April 2025
Medical
The value of hope
By CONTRIBUTOR
16 April 2025
1
2
3
…
37
Next »