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Rare insights
Rare insights
BEACONS selects seven sites, finalises gene list for genomic newborn screening study
By admin
28 January 2026
Rare insights
Living and advocating through a complex medical journey: erythromelalgia, visual snow syndrome and autoimmune dysregulation
By CONTRIBUTOR
28 January 2026
Rare insights
Drought-tolerant faith
By CONTRIBUTOR
25 January 2026
Rare insights
The Remarkable Life of Ibelin to Receive EURORDIS Black Pearl Media and Awareness Raising Award
By admin
22 January 2026
Rare insights
Awareness to innovation: Sophie’s Hope Foundation paves the way for GSD1b research
By CONTRIBUTOR
21 January 2026
Rare insights
Sickle Cell Disease Association of America names Folk-Nagua to board
By admin
20 January 2026
Rare insights
Landmarks illuminate purple and blue for Feeding Tube Awareness Week 2026
By admin
20 January 2026
Rare insights
When medicine lags: how US healthcare falls behind, what it costs us and how to fix it
By CONTRIBUTOR
14 January 2026
Rare insights
Kawasaki disease misdiagnoses are rising: another child nearly missed
By CONTRIBUTOR
8 January 2026
Rare insights
Fahr better to know
By CONTRIBUTOR
7 January 2026
Rare insights
24 Days of RARE Inspirations nominations
By Joe Rumney, RARE Revolution
24 December 2025
Rare insights
A day in the life: reconciling grief and gratitude
By CONTRIBUTOR
17 December 2025
Rare insights
From silence to support: the journey of CS ECHO and Cowden syndrome
By CONTRIBUTOR
10 December 2025
Rare insights
A tough year
By Nicola Redfern
10 December 2025
Rare insights
Without FDA flexibility for rare diseases our daughter’s future is at risk
By CONTRIBUTOR
8 December 2025
Rare insights
Patient organisation Cure HSPB8 adopts new name: Cure MFM13
By CONTRIBUTOR
8 December 2025
Rare insights
The Muscle Help Foundation and its patron, Lorraine Kelly, call on supporters to donate in the UK’s biggest public fundraiser, the ‘Big Give Christmas Challenge’
By CONTRIBUTOR
8 December 2025
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