Rare insights

Rare insights

Epilepsy seizure alert dog is credited with owner being seizure-free for five years

By CONTRIBUTOR

27 August 2025

Rare insights

Making a difference in the world as someone with a rare condition

By CONTRIBUTOR

25 August 2025

Rare insights

Leave no one behind

By CONTRIBUTOR

20 August 2025

Rare insights

Simons Searchlight – 15-years of genetic discovery

By Becky Pender, RARE Revolution

20 August 2025

Rare insights

The heartbroken parents of a special little boy who ‘touched so many people’s lives’ have pledged to raise over £100,000 in his memory for the new Cambridge Children’s Hospital

By admin

18 August 2025

Rare insights

Reasons to be cheerful?

By Nicola Redfern

13 August 2025

Rare insights

Living with acrodysostosis type 1: Jordan’s story

By Becky Pender, RARE Revolution

11 August 2025

Rare insights

500 miles for Mowat-Wilson syndrome: riders cycle from Montreal to New York to raise awareness

By Becky Pender, RARE Revolution

11 August 2025

Rare insights

Mila’s journey with CCHS

By CONTRIBUTOR

6 August 2025

Rare insights

Navigating life with APDS2 and other rare diseases: Tasmin’s story

By CONTRIBUTOR

30 July 2025

Rare insights

$1.1 Million grant funds research on rare neurodevelopmental disorder MEF2C

By admin

28 July 2025

Rare insights

My brother’s journey into the world of neurological challenges

By CONTRIBUTOR

21 July 2025

Rare insights

Landmarks across Australia and New Zealand light up pink and purple to raise awareness during National Eosinophilic Week

By admin

21 July 2025

Rare insights

2nd MENA Congress for Neurogenetic Disorders 2025

By admin

16 July 2025

Rare insights

2nd MENA Congress for Metabolism in Health and Disease 2025

By admin

16 July 2025

Rare insights

Expanding appreciation for the patient journey

By Becky Pender, RARE Revolution

16 July 2025

Rare insights

Science side-by-side

By Becky Pender, RARE Revolution

9 July 2025

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