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Dyne Therapeutics and CureDuchenne partner to give the gift of mobility to two local families

On August 21, 2023, Dyne Therapeutics hosted the “The Muscle to Keep Life Moving™” Fundraising Golf Event at The Cape Club of Sharon, in partnership with CureDuchenne, with the goal of providing critically important mobility equipment to people living with serious muscle diseases. 100% of the proceeds from the event, which raised more than $135,000, were used to provide two local families with new wheelchair-accessible vans.

Accessible vans are invaluable to families living with Duchenne muscular dystrophy, a degenerative neuromuscular disease. The Parisi family, whose sons Caeden and Devin live with Duchenne muscular dystrophy, received a van that can accommodate two wheelchairs so they can travel with both boys. The Brown family was also presented with a new van, which will allow them to be more mobile with son Brian. In a “pay-it-forward” moment, the Browns donated their gently used van to another family in need.

Tiffany Thompson, Sr. Manager, Patient Advocacy & Medical Affairs Operations, Dyne Therapeutics; Ash Dugar, Chief Medical Affairs Officer, Dyne Therapeutics; Kirsten Parisi; Caeden Parisi; Devin Parisi; Molly White, Vice President, Global Head of Patient Advocacy and KOL Engagement, Dyne Therapeutics; Josh Brumm, President and Chief Executive Officer, Dyne Therapeutics; Brian Brown; Amy Brown; Lianna Orlando, Vice President of Research, CureDuchenne

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