Life’s a Polyp Foundation celebrates grand launch for Colorectal Cancer Awareness Month
A new chapter begins in familial adenomatous polyposis advocacy
The long time Life’s a Polyp rare disease platform for familial adenomatous polyposis (FAP) and short bowel syndrome founded by Jenny Jones is taking advocacy for patients and their families to a new level through the formation of Life’s a Polyp Foundation which launched March 7, 2026.
FAP is characterised as a proliferation of polyps in the colon and/or rectum, usually occurring in mid-teens. There is no approved therapeutic option for treating FAP patients, for whom active surveillance and surgical resection of the colon and/or rectum remain the standard of care. If untreated, FAP typically leads to cancer of the colon and/or rectum. There is a significant hereditary component to FAP with a reported incidence of one in 5,000 to 10,000 in the US and one in 11,300 to 37,600 in Europe. Despite dramatic advancements in the medical understanding of FAP, far too many patients report difficulty finding adequate information and medical providers who are familiar with FAP.
“I started Life’s a Polyp in 2012 with the intention to help others avoid the same physical and mental health experiences I had as a child navigating FAP. Now, Life’s a Polyp Foundation, will take that further by helping to expand awareness in education, advocacy, community, and research for patients and medical providers. Together, we’re determined to change the future of FAP – from education to preventing surgery altogether.” – Jenny Jones, founder, executive director, Life’s a Polyp Foundation
Life’s a Polyp Foundation advocates for improved FAP screening and surveillance guidelines, increased research funding for new therapies, enhanced genetic counselling resources for patients and families, comprehensive support services, and equitable access to innovative treatments.
Visit www.LifesaPolyp.org to learn more about FAP, find clinical trials and community resources, as well as donate to help fund FAP research.
Email: Jenny@LifesaPolyp.org
LinkedIn: @LifesaPolyp
Facebook, Instagram, TikTok: @LifesaPolyp
YouTube: @LifesaPolyp
