If everyone in the world even came close to having the integrity and passion you both have, we would live in Eden! THANK YOU for your partnership, but more importantly, for who you are in this world!! It’s been such a pleasure for both Laura and I, and I very much hope to connect and partner again soon.”

Marleni Arvelo-saillant

Sanofi

Rare Revolution Magazine is a great partner to work with. The Team has great experience and passion for helping people with rare disease which is something we share. We worked with RRM on several disease awareness projects before this main project, a Spotlight edition about ANCA- associated vasculitis, translated into a further six languages. We wanted to involve the PAN-European patient associations we collaborate with and the RRM team showed great understanding and flexibility to accommodate this. Excellent feedback was received by patient associations, patients and carers across Europe. I would like to thank Emma and Rebecca and the whole RRM team on the excellent collaboration. It will certainly not be the last one and I am looking forward to future projects."

Dijana Krafcsik

Vifor Pharma

“It has been a real pleasure to work with Rare Revolution Magazine. The team are passionate, ambitious, knowledgeable and collaborative. They definitely have their finger firmly on the pulse for rare diseases.”

Holly Lumgair

Patient Advocacy Manager

Many thanks for sharing the RARE Revolution MENA and GCC region spotlight edition and for your kind words! Happiness and honour is mine indeed. I'm so grateful for you & Dr. Magdy for providing me with such a wonderful opportunity to share a bit of my story with the world so that it may be an inspiration to other patients and the community at large. It's always a pleasure for me to be in service and pay back to the community whenever and wherever it allows. Thanks again for your kind attention and please don't hesitate to get back to me for any further projects through which I could be of assistance to you, your esteemed magazine and the world.

Walid Kobisi

Patient Advocate

I had fun working with you on this. I am glad to see our efforts comes to fruition in such a wonderful way. Thanks a lot for making me part of this. Looking forward to future collaborations that help address the many issues people with rare diseases often deal with.

Dr Azzam D. Alotaibi

DR

Thank you so much for your work on this article, as you know I am biased but feel it is SO important for people to have access to this information. I think this is incredibly well written and captures many of the challenging nuances of genetic counseling and testing. The RARE Revolution team is comprised of compassionate, driven, engaging people and it was a pleasure to work with them from start to finish.

Laynie Dratch

ScM, CGC, Genetic Counsellor , Penn FTD Center

“One of our core values at Genpharm is to Always Put Patients First. Rare Revolution Magazine shares the same belief. Collaborating on the occasion of Rare Disease Day in this Spotlight Edition for the Middle East, has been a natural fit and a very exciting project! We look forward to working again together in advocating for the rare disease community around the world."

Karim Smaira

CEO Genpharm

This whole magazine is a gift to the community

Carri Levy

TV producer Behind the Mystery, Rare and Genetic

I love working with you. Efficient, supportive, responsive, flexible and adaptable. Professional, passionate and very focused. It works for me!

Cambridge Rare Disease Network

RARE revolutionary

Rare Revolution Magazine is essentially a Rare Disease Conference - delivered every quarter and accessible from the comfort of my own living room, for free. It ticks

Every Box

RARE REVOLUTIONARY

I must thank you for the creation and release of the publication RARE Revolution. The rare disease community has been in need of a publication like this for quite some time and you answered our calls.

A RARE Revolutionary

RARE REVOLUTIONARY