A UK charity is inviting people from across the country to their annual Family Day for support and connection. PSPA, a national charity which houses its head office in Milton Keynes, is hosting its Family Day event on 28 June at Kents Hill Park on Timbold Drive. The charity supports families affected by rare brain diseases called Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

PSP & CBD are neurodegenerative conditions which over time cause issues with balance, speech, vision, mobility and swallowing. Currently there are no treatments to slow the progression of the diseases and no cure.

Since the conditions are relatively unheard of, families affected can feel confused and isolated as they come to terms with their diagnosis and plan ahead.

PSPA hosts annual Family Day events to provide opportunities for families to connect and support each other. They also organise a range of speakers and activities throughout the day, to help provide more information about the conditions and how they can impact families both emotionally and physically.

This year, the charity has planned a day packed with information and activities, beginning from 10am. People can take part in a workshop with RareMinds. Neruologist Dr Negin Holland, will also provide insights  into PSP & CBD. There will also be some fun activities for the younger people attending .

Carol Amirghiasvand, PSPA’s Director of Service Development and Improvement, says of the event: “We love hosting our Family Days. It is a great chance to bring families together, connect them to each other as well as to leading healthcare professionals. They also get the opportunity to meet members of the PSPA team. People attending the days, feedback that they are fun, informative and they feel less alone in their experiences. And that is exactly what we want.

“We hope to welcome families from across the country in Milton Keynes for our 2025 event.”

Anyone wanting to join PSPA at their free Family Day , can register at www.eventbrite.co.uk/e/2025-pspa-family-day-milton-keynes-tickets-1267025229569?aff=oddtdtcreator

Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) are two rare neuro-degenerative diseases.

They are caused by the loss of neurons in certain parts of the brain. Over time, this leads to difficulties with balance, mobility, speech, vision, swallowing and cognition.

Both conditions are life limiting. There is no treatment and no cure.

Currently, around 60% of people living with either disease, are initially misdiagnosed with other conditions including Parkinson’s, stroke and depression.

PSPA is the only UK charity dedicated to creating a better future for every affected by PSP & CBD.

We will do this by:

• Providing information and support to enable families living with PSP & CBD to live their best possible lives

• Improving the quality of life for people living with the condition via research and awareness raising

• Putting the voice of the PSP & CBD community at the heart of what we do.

For more information please visit www.pspassociation.org.uk

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