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Raising awareness and celebrating people with craniofacial differences

Moebius syndrome Raising awareness and celebrating people with craniofacial differences Kindness is Everything

DENVER, Colorado- The Moebius Syndrome Foundation, American Cleft Palate Craniofacial Association, Children’s Craniofacial Association, Face Equality International, myFace, the Kindness is Everything team, and other organizations worldwide will be raising awareness and celebrating the people and families affected by Moebius syndrome and similar craniofacial conditions with a “Kindness is Everything” campaign from December through January 24, 2023.

“We are excited to help spread worldwide awareness about the power of showing kindness, respect, and equality to people with differences. We aim to raise awareness about Moebius syndrome and similar conditions and how people with craniofacial differences and disabilities are like everyone else. Each of us is entitled to the same opportunities and consideration. We believe that by increasing awareness and providing positive education in our homes, schools, and workplaces, together we can help create a more respectful, equitable, and inclusive world,”

Jenny Whitman, executive director of the Moebius Syndrome Foundation.

The Moebius Syndrome Foundation has been unifying the Moebius syndrome community for nearly thirty years.

“Whether we’re bringing people together online or in person, we always strive to bring our small community together. We support all Moebius and craniofacial organization groups worldwide as they spread awareness and celebrate those affected by Moebius syndrome and similar conditions,”

Jacob Licht, president of the Moebius Syndrome Foundation.and father of a daughter with Moebius syndrome.

Moebius syndrome is a rare neurological condition that affects around 2-20 per million births. It causes facial paralysis or weakness, can cause speech, feeding, or breathing difficulties, and in some cases, can cause malformed or missing limbs.

The Moebius Syndrome Foundation is the nation’s largest organization dedicated to providing information and support to people with Moebius syndrome and their families. The Foundation also has the support of a Scientific Advisory Board dedicated to researching the cause of Moebius syndrome and treatments that may help people living with the condition and hosts national conferences every two years.

For more information, please contact Jenny Whitman, executive director, at +1-844-663-2487 or jenny@moebiussyndrome.org.

For more information about Moebius syndrome, please visit www.moebiussyndrome.org.

Other referenced partner websites :

http://www.acpa-cpf.org

ccakids.org

myface.org

faceequalityinternational.org

https://www.backyardbrine.com/pages/our-kindness-is-everything-campaign


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