SMA Europe launches new clinical trials finder to support access to clinical trials and accelerate progress in SMA treatment

30 September 2025

30 September 2025 SMA Europe proudly announces the launch of the Clinical Trials Finder, a groundbreaking online tool for the global SMA community.

The Clinical Trials Finder is designed to empower people living with Spinal Muscular Atrophy (SMA), their families, healthcare professionals, and patient organisations so they can easily explore ongoing clinical trials not only across Europe but also worldwide.

By providing a central, reliable, and accessible platform, SMA Europe aims to make this tool the go-to global resource for finding SMA clinical research opportunities, supporting faster progress towards better treatments and care for everyone who lives with SMA.

Clinical trials are a cornerstone of progress in SMA research, but participation can be limited by fragmented information and the growing complexity of the clinical trial landscape. The SMA Clinical Trials Finder provides a centralised, user-friendly platform to:

Search for clinical trials tailored to individual criteria
Explore a worldwide map of all ongoing SMA clinical trials
Sign up for personalised email alerts to stay informed of new opportunities
Benefit from real-time information sourced from clinicaltrials.gov to patients, families, and professionals.

Clinical trial recruitment has become increasingly complex with the growing number of studies in SMA. By providing transparent and accessible information in one place, we believe this tool will benefit everyone involved – patients, families, clinicians, and researchers alike.” Dr. Thomas Doktor, Chair of the Treatment Committee of SMA Europe

The tool will also serve as a resource for healthcare professionals and patient organisations, who often receive questions from families about ongoing studies across Europe and worldwide, and for industry partners who depend on efficient recruitment to accelerate trial timelines.

“We know from our community that many people living with SMA want to participate in research but face barriers in accessing clear and timely information. This tool was developed to respond directly to that need, empowering families around the globe, to make informed decisions and supporting faster recruitment into trials.” Dr. Nicole Gusset, CEO of SMA Europe

The Clinical Trials Finder is part of the broader SMA Europe Clinicals Trial Hub, a platform offering diverse information on ss and on products currently under investigation. It is also integrated into the country profiles on OdySMA, SMA Europe’s platform for healthcare and treatment access-related information, ensuring that the community can access comprehensive resources in one location.

We invite the SMA community, clinicians, and researchers to explore the Clinical Trials Finder today and share it widely to ensure more families can benefit.