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Author:
admin
RARE News
RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience
By admin
23 January 2023
RARE News
Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes
By admin
20 January 2023
RARE News
Know your sickle cell trait status, according to new campaign
By admin
20 January 2023
RARE News
Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign
By admin
19 January 2023
RARE News
Rare Disease Innovation & Partnership Summit
By admin
19 January 2023
RARE News
Cell & Gene Therapy Summit 2023
By admin
18 January 2023
RARE News
PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community
By admin
18 January 2023
RARE News
“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases
By admin
6 January 2023
RARE News
The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community
By admin
3 January 2023
RARE News
CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy
By admin
8 December 2022
RARE News
NFL players spotlight Sickle Cell Disease Association of America
By admin
7 December 2022
RARE News
DEBRA launches £5m fundraising appeal to stop the pain of EB
By admin
16 November 2022
RARE News
Winners of Gene People Awards 2022 announced
By admin
16 November 2022
RARE News
Leading Muscular Dystrophy charity gives petrol heads a ‘driving experience of a lifetime’ as it continues its commitment to delivering life-changing wish-fulfilment experiences to children and young adults
By admin
26 October 2022
RARE News
CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy
By admin
20 October 2022
RARE News
The Student Voice Prize: an international essay competition raising the profile of rare disease
By admin
13 October 2022
RARE News
World Orphan Drug Congress 2022 – Europe’s most exciting orphan drug event
By admin
10 October 2022
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