RARE News

American Kidney Fund will host cystinosis camp as part of national virtual camp for children and teens with kidney disease

By admin

25 May 2023

RARE News

The Muscle Help Foundation launches 20th anniversary celebrations

By admin

16 May 2023

RARE News

Global Genes announces partnership with CureJM Foundation to expand support in rare disease community for mental health-related challenges

By admin

16 May 2023

RARE News

The Twin Run – supporting high-risk multiple birth parents and twin research

By admin

12 May 2023

RARE News

CureDuchenne partners with PicnicHealth to advance research and simplify patient experience by incorporating electronic health records into data-integrated biobank 

By admin

5 May 2023

RARE News

Specialty pharma expert adopts name of global parent to reflect breadth of offer that brings a rare and special perspective to the market

By admin

2 May 2023

RARE News

PIP-UK Poland syndrome charity launches new podcast series: What about PS? A Poland Syndrome Podcast

By admin

30 April 2023

RARE News

Survey shows 60% of people living with progressive supranuclear palsy and corticobasal degeneration are initially misdiagnosed

By admin

28 April 2023

RARE News

What is Quality of Life (QoL) for people living with a rare disease?  

By admin

24 April 2023

RARE News

National health charity, CMTUK, is to host Charcot-Marie-Tooth conference on 21–22 April 2023

By admin

21 April 2023

RARE News

May Movement Challenge – Free adaptive and accessible online exercise

By admin

17 April 2023

RARE News

8th annual RARE Drug Development Symposium – May 1-3, 2023

By admin

7 April 2023

RARE News

Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women

By admin

28 March 2023

RARE News

The Patient Centricity & Engagement Conference – 10th May – London

By admin

17 March 2023

RARE News

The Pharma Social Media Conference – 11th May – London

By admin

17 March 2023

RARE News

Sickle Cell Disease Association of America to promote clinical trials

By admin

16 March 2023

RARE News

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

By admin

28 February 2023