Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
RARE and Under-Funded
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE caregiving
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
RARE and Under-Funded
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Author:
admin
RARE News
Operationalize: Expanded Access Programs Summit (March 21-23, 2023, Boston, MA)
By admin
24 February 2023
RARE News
Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families
By admin
22 February 2023
RARE News
Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!
By admin
17 February 2023
RARE News
Three small research grants awarded
By admin
17 February 2023
RARE News
CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations
By admin
16 February 2023
RARE News
Sure announced as headline sponsor for Parallel Windsor 2023
By admin
13 February 2023
RARE News
Shining the light on tube feeding
By admin
5 February 2023
RARE News
From SMA Europe: We are excited to announce that our OdySMA project is going live!
By admin
1 February 2023
RARE News
Raising awareness and celebrating people with craniofacial differences
By admin
24 January 2023
RARE News
RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience
By admin
23 January 2023
RARE News
Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes
By admin
20 January 2023
RARE News
Know your sickle cell trait status, according to new campaign
By admin
20 January 2023
RARE News
Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign
By admin
19 January 2023
RARE News
Rare Disease Innovation & Partnership Summit
By admin
19 January 2023
RARE News
Cell & Gene Therapy Summit 2023
By admin
18 January 2023
RARE News
PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community
By admin
18 January 2023
RARE News
“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases
By admin
6 January 2023
Posts navigation
Older posts
Newer posts
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset
