Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
Women in RARE
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters to the editor
Medical
News
Patient voice
RARE employment
RARE parenting
RARE ramblings
RARE REV-inar
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
Latest Edition
Women in RARE
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
RARE News
RARE News
Cell & Gene Therapy Summit 2023
By admin
18 January 2023
RARE News
PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community
By admin
18 January 2023
Patient voice
Wings of Fire: escaping the shadows of a rare disease that was undiagnosed for 25 years
By admin
11 January 2023
RARE News
“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases
By admin
6 January 2023
Turning the tide for rare disease
Rare × 2 = ? What having twins with a rare condition teaches you about people
By admin
4 January 2023
RARE News
The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community
By admin
3 January 2023
RARE News
Blueprint Medicines reports clinical data highlighting leadership in developing targeted treatment options for patients with systemic mastocytosis
By admin
22 December 2022
RARE News
Zynerba Pharmaceuticals announces publication of data from phase 3 CONNECT-FX study of Zygel™ in the Journal of Neurodevelopmental Disorders
By admin
20 December 2022
Turning the tide for rare disease
The Christmas ring
By admin
19 December 2022
Turning the tide for rare disease
Rare Diseases Lesotho Association: revolutionising rare disease care and raising awareness in Lesotho
By admin
15 December 2022
Turning the tide for rare disease
Rare Land: a Greek film shining a light on alpha mannosidosis and rare disease
By admin
12 December 2022
RARE News
CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy
By admin
8 December 2022
RARE News
NFL players spotlight Sickle Cell Disease Association of America
By admin
7 December 2022
Charity & advocacy
#DuchenneCan: celebrating what people with Duchenne CAN achieve
By admin
5 December 2022
Turning the tide for rare disease
Matt Hay: becoming a neurofibromatosis advocate and giving back to his community
By admin
1 December 2022
Turning the tide for rare disease
Jessica Massengale: living strong with scleroderma
By admin
24 November 2022
Turning the tide for rare disease
A celebration of 25 years in advocacy: Tanya Collin-Histed, CEO of the International Gaucher Alliance
By admin
18 November 2022
« Previous
1
…
11
12
13
14
15
…
26
Next »
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset