Rare insights

Rare insights

Europe’s rare disease community sets out Blueprint for coordinated EU action

By admin

22 October 2026

Rare insights

Glycogen Storage Disease Awareness Week 19-25 October 2026

By admin

22 October 2026

Rare insights

PBC push for placebo changes

By Becky Pender, RARE Revolution

21 October 2026

Rare insights

I am rare, I am here

By CONTRIBUTOR

14 October 2026

Rare insights

Whittlebury Park marking its 15th year hosting the Muscle Help Foundation’s flagship Porsche Muscle Dream Experience

By admin

12 October 2026

Rare insights

I was told it was anxiety–but it was Wilson’s disease

By CONTRIBUTOR

12 October 2026

Rare insights

SMA community puts its priorities at the heart of future research

By admin

9 October 2026

Rare insights

New research aims to build evidence base for braille food labelling across the UK

By admin

9 October 2026

Rare insights

Beyond awareness: a new chapter for the MCT8 deficiency community

By CONTRIBUTOR

8 October 2026

Rare insights

UN SEEN ME: when the doctor becomes the patient

By CONTRIBUTOR

7 October 2026

Rare insights

Sickle Cell Disease Association of America Inc. hosts externally led patient-focused drug development meeting on sickle cell disease

By admin

2 October 2026

Rare insights

CMTUK celebrates 40 years of supporting those living with a rare and little-known disability

By CONTRIBUTOR

2 October 2026

Rare insights

15th annual CureDuchenne golf shootout raises over $700,000 to advance Duchenne muscular dystrophy research

By CONTRIBUTOR

1 October 2026

Rare insights

Hope for tomorrow: navigating the complexities of clinical trials

By Emma Bishop, RARE Revolution

30 September 2026

Rare insights

Living with mastocytosis: understanding your diagnosis

By Karen Roberts, RARE Revolution

30 September 2026

Rare insights

One community, one cause: translating global connections into action.

By CONTRIBUTOR

28 September 2026

Rare insights

Hope for a precision medicine for ADNP syndrome

By CONTRIBUTOR

23 September 2026

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