Rare insights

Rare insights

From a moment, to momentum: Why Undiagnosed Day 2026 is shaping what happens next

By CONTRIBUTOR

29 April 2026

Rare insights

The power of your participation: strengthening data robustness and ethical trial design with natural history data

By CONTRIBUTOR

27 April 2026

Rare insights

Novartis receives EMA CHMP positive opinion for Itvisma, gene therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA)

By admin

24 April 2026

Rare insights

The student-led revolution in medical genetics

By CONTRIBUTOR

24 April 2026

Rare insights

Expediting novel therapies: a roadmap to a bright future for Saudi Arabia’s citizens

By Emma Bishop, RARE Revolution

22 April 2026

Rare insights

The invisible battle: how MSA rewrote my soul

By CONTRIBUTOR

19 April 2026

Rare insights

Rare but strong: turning a diagnosis into a community

By CONTRIBUTOR

18 April 2026

Rare insights

Research shows eye movement tests can help clinicians spot PSP earlier

By admin

17 April 2026

Rare insights

The diagnostic odyssey: how misdiagnosis and indication broadening can undermine rare disease clinical trials

By CONTRIBUTOR

8 April 2026

Rare insights

When strength looks like rest

By CONTRIBUTOR

8 April 2026

Rare insights

Under the skin: life with epidermolysis bullosa

By CONTRIBUTOR

6 April 2026

Rare insights

The silent crisis in our community – why amyloidosis awareness matters now

By CONTRIBUTOR

6 April 2026

Rare insights

Your health is your wealth

By CONTRIBUTOR

2 April 2026

Rare insights

The weight of stillness – a journey with dystonia: a first journal entry

By CONTRIBUTOR

1 April 2026

Rare insights

A paw-sitive diagnosis: how our rescue dog, Nash, helped my daughter embrace her rare disease

By CONTRIBUTOR

27 March 2026

Rare insights

Making it easier for patients living with rare diseases to find the right specialist

By CONTRIBUTOR

25 March 2026

Rare insights

Why microcephaly must be included in global rare disease agendas: Africa’s perspective

By CONTRIBUTOR

23 March 2026

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