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Turning the tide for rare disease
Turning the tide for rare disease
Beat SCAD’s passionate and persistent quest for answers for the spontaneous coronary artery dissection community
By admin
9 May 2022
Patient voice
A story of heartbreak and hope: Juju’s journey with CLN2 Batten disease
By admin
9 May 2022
Turning the tide for rare disease
The Big Sunflower Project
By admin
2 May 2022
RARE News
National health charity CMTUK is to host annual conference on May 6th-7th
By admin
29 April 2022
Patient voice
The rare and wonderful opportunity of parenting a child with a RARE condition
By admin
29 April 2022
RARE News
Undiagnosed Day 2022
By admin
28 April 2022
Turning the tide for rare disease
A multi-centre registry for idiopathic pulmonary capillaritis
By admin
25 April 2022
Turning the tide for rare disease
Project Sebastian: a safe space for the rare disease community to talk, listen and connect
By admin
20 April 2022
Turning the tide for rare disease
Rare Patient Voice: helping patients and caregivers share their voices
By admin
14 April 2022
Turning the tide for rare disease
The Akari Foundation – a light of hope for people with DMD in the Hispanic community
By admin
11 April 2022
RARE News
California mental health initiative to fight hidden sickle cell symptoms
By admin
8 April 2022
Turning the tide for rare disease
Riding the wave of medical research to find a cure for Ellie
By admin
6 April 2022
Rare insights
Medics4RareDiseases joins forces with Bionical Emas to launch new online training
By admin
5 April 2022
Patient voice
Redefine: Max Feinstein’s concept album inspired by his life with haemophilia
By admin
4 April 2022
Rare insights
National charity MPS Society encourages the public to spread awareness about rare genetic disease
By admin
4 April 2022
RARE News
Global non-profit CureDuchenne announces futures national conference for the Duchenne muscular dystrophy community to be held May 27–29
By admin
1 April 2022
Patient voice
MNGIE: Verity Grainger’s mission to raise funds for a life-saving therapy
By admin
30 March 2022
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