RARE employment

RARE employment

Professional careers and rare disease – finding a balance that works

By admin

6 October 2021

RARE parenting

Parenting superpower series – play listening

By admin

6 October 2021

RARE parenting

Parenting superpower series – special time

By admin

6 October 2021

RARE parenting

Parenting superpower series – loving limits

By admin

6 October 2021

RARE News

BBS UK participates in BBS global day to support individuals affected by Bardet Biedl syndrome

By admin

25 September 2021

Patient voice

Ataxia and us – Louise and Karls’ Story

By admin

20 September 2021

Patient voice

Mum of four children living with disabling rare neuromuscular disease GNEM raises awareness for foundation aiming to find a cure

By admin

20 September 2021

RARE News

Niemann-Pick UK are set to launch ‘Invisible Me’ campaign and short film ‘Invisible Manners’

By admin

14 September 2021

RARE parenting

Parenting superpower series – the gift of listening partnerships

By admin

30 August 2021

RARE News

Michael McGrath – CEO of The Muscle Help Foundation discusses academic research with University of Hertfordshire

By admin

13 August 2021

Patient voice

World Hepatitis Day – Krista’s journey with drug-induced autoimmune hepatitis

By admin

26 July 2021

Medical

Zebras do exist: the diagnostic odyssey of rare disease patients

By admin

13 July 2021

RARE News

Visual Snow Initiative: the charity on a mission to cure visual snow syndrome

By admin

12 July 2021

Charity & advocacy

Celebrating a year of mental health support for men affected by rare conditions!

By admin

30 June 2021

RARE News

All change at Genetic Disorders UK

By admin

2 June 2021

Charity & advocacy

Why care for carers?

By admin

31 May 2021

RARE News

It’s NOT Parkinson’s. Progressive supranuclear palsy and corticobasal degeneration

By admin

28 May 2021

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