Rare insights

Rare insights

Red tape is ruining the potential of partnerships between patient groups and the pharmaceutical industry – it’s time for change

By CONTRIBUTOR

1 March 2023

Rare insights

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

By admin

28 February 2023

Rare insights

Optimising market access for rare disease products: insights from Craig Caceci

By CONTRIBUTOR

27 February 2023

Rare insights

Operationalize: Expanded Access Programs Summit (March 21-23, 2023, Boston, MA)

By admin

24 February 2023

Rare insights

Finding investment for gene therapies

By CONTRIBUTOR

22 February 2023

Rare insights

Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families

By admin

22 February 2023

Rare insights

Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!

By admin

17 February 2023

Rare insights

Three small research grants awarded

By admin

17 February 2023

Rare insights

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

By admin

16 February 2023

Rare insights

Aaron Jackson: raising awareness of organ donation, and bringing hope to the transplant community

By CONTRIBUTOR

15 February 2023

Rare insights

Sure announced as headline sponsor for Parallel Windsor 2023

By admin

13 February 2023

Rare insights

Richard’s RARE Ramblings: FEAR!

By CONTRIBUTOR

8 February 2023

Rare insights

Shining the light on tube feeding

By admin

5 February 2023

Rare insights

A new year brings new opportunities: Global Genes – supporting patients, caregivers, advocates and organisations

By CONTRIBUTOR

1 February 2023

Rare insights

“Developing positive change in how we diagnose, treat and care for patients with a rare disease.” Rhetoric or reality?

By CONTRIBUTOR

1 February 2023

Rare insights

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

Rare insights

Medics 4 Rare Diseases: reframing rare disease – one Instagram story at a time

By CONTRIBUTOR

25 January 2023

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