RARE News

RARE News

The Neuromuscular Disease Foundation Takes the Lead

By admin

4 February 2022

RARE News

The urgent case for patient assistance funding

By admin

3 February 2022

Patient voice

Everyone, on the bus!

By CONTRIBUTOR

28 January 2022

A day in the life

My year at RARE Youth Revolution

By CONTRIBUTOR

26 January 2022

RARE News

NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits

By admin

20 January 2022

RARE News

RARE Revolution promotions announcement

By admin

7 January 2022

Rare insights

Publication Finds that Modernization of U.S. Newborn Screening System is Necessary, Calls for Change

By admin

6 January 2022

RARE News

Rare disease clinic for Poland Syndrome

By admin

21 December 2021

RARE News

Foundation of the RE(ACT) Discovery Institute

By admin

14 December 2021

Charity & advocacy

Living with muscular dystrophy in Nepal

By CONTRIBUTOR

13 December 2021

RARE News

Sickle Cell Disease Association of America names Regina Hartfield CEO

By admin

10 December 2021

Patient voice

Caring for his children with VICI syndrome: Muzaffar Anjum’s story

By CONTRIBUTOR

8 December 2021

Patient voice

“Do you hear me?”

By CONTRIBUTOR

3 December 2021

Medical

Seeing Red

By CONTRIBUTOR

26 November 2021

Patient voice

My scars tell a story

By CONTRIBUTOR

24 November 2021

Charity & advocacy

A new UK charity launches to support those impacted by Glut1DS

By CONTRIBUTOR

12 November 2021

Patient voice

Hannah, Me and NCSE

By CONTRIBUTOR

10 November 2021

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