Rare insights

Rare insights

Parenting superpower series – special time

By CONTRIBUTOR

6 October 2021

Rare insights

Parenting superpower series – loving limits

By CONTRIBUTOR

6 October 2021

Rare insights

BBS UK participates in BBS global day to support individuals affected by Bardet Biedl syndrome

By admin

25 September 2021

Rare insights

Ataxia and us – Louise and Karls’ Story

By CONTRIBUTOR

20 September 2021

Rare insights

Mum of four children living with disabling rare neuromuscular disease GNEM raises awareness for foundation aiming to find a cure

By CONTRIBUTOR

20 September 2021

Rare insights

Niemann-Pick UK are set to launch ‘Invisible Me’ campaign and short film ‘Invisible Manners’

By admin

14 September 2021

Rare insights

Parenting superpower series – the gift of listening partnerships

By CONTRIBUTOR

30 August 2021

Rare insights

Michael McGrath – CEO of The Muscle Help Foundation discusses academic research with University of Hertfordshire

By admin

13 August 2021

Rare insights

World Hepatitis Day – Krista’s journey with drug-induced autoimmune hepatitis

By CONTRIBUTOR

26 July 2021

Rare insights

Zebras do exist: the diagnostic odyssey of rare disease patients

By CONTRIBUTOR

13 July 2021

Rare insights

Visual Snow Initiative: the charity on a mission to cure visual snow syndrome

By admin

12 July 2021

Rare insights

Celebrating a year of mental health support for men affected by rare conditions!

By CONTRIBUTOR

30 June 2021

Rare insights

All change at Genetic Disorders UK

By admin

2 June 2021

Rare insights

Why care for carers?

By CONTRIBUTOR

31 May 2021

Rare insights

It’s NOT Parkinson’s. Progressive supranuclear palsy and corticobasal degeneration

By admin

28 May 2021

Rare insights

My journey with multiple sclerosis and advocacy

By CONTRIBUTOR

28 May 2021

Rare insights

Non-profit partnership with Illumina aims to reduce the diagnostic odyssey for individuals living with a rare epilepsy

By admin

12 April 2021

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