Rare insights

Rare insights

NF1 breast cancer awareness campaign: Sharon’s story

By Emma Bishop, RARE Revolution

15 October 2024

Rare insights

NF1 breast cancer awareness campaign: Jodie’s story

By Emma Bishop, RARE Revolution

15 October 2024

Rare insights

A day in the life of a PSPA helpline manager

By CONTRIBUTOR

14 October 2024

Rare insights

Research into diagnostic tests celebrated at international conference

By CONTRIBUTOR

9 October 2024

Rare insights

Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR

9 October 2024

Rare insights

Understanding palliative care

By CONTRIBUTOR

9 October 2024

Rare insights

What is pain?

By CONTRIBUTOR

9 October 2024

Rare insights

Join the movement: championing care for rare musculoskeletal conditions

By CONTRIBUTOR

9 October 2024

Rare insights

MendelScan—AI for good: informing patient and public perception

By Nicola Miller, RARE Revolution

7 October 2024

Rare insights

Systemic mastocytosis: A new study reveals the perceptions and realities of this rare mast cell disorder

By CONTRIBUTOR

2 October 2024

Rare insights

Putting patients first?

By CONTRIBUTOR

2 October 2024

Rare insights

CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign

By admin

1 October 2024

Rare insights

Sickle Cell Disease Association of America Inc. holds convention in Atlanta

By admin

1 October 2024

Rare insights

My unending search for a diagnosis?

By CONTRIBUTOR

25 September 2024

Rare insights

Improved patient finding strategies for rare diseases – a win-win for patients and drug developers

By CONTRIBUTOR

25 September 2024

Rare insights

PSPA invites applications for small research projects looking into PSP & CBD

By admin

24 September 2024

Rare insights

13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts

By admin

24 September 2024

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