Patient voice

Patient voice

Fostering a positive mind and body

By CONTRIBUTOR

1 November 2023

Patient voice

Let’s talk about sex, baby!

By CONTRIBUTOR

25 October 2023

Patient voice

Joshua Ruff: a journey of transformation through faith, family and farming

By CONTRIBUTOR

4 October 2023

Patient voice

Living with cold agglutinin disease: Jörg’s story

By CONTRIBUTOR

25 September 2023

Patient voice

The physical, mental, and emotional toll of Charcot-Marie-Tooth disease: Joe Hogan’s story

By CONTRIBUTOR

13 September 2023

Patient voice

Together—every step

By CONTRIBUTOR

31 May 2023

Patient voice

Generalised arterial calcification of infancy (GACI): Ruben’s story

By CONTRIBUTOR

17 May 2023

Patient voice

Raymond: A “ray of sunshine” living with VAMP2

By CONTRIBUTOR

21 April 2023

Patient voice

Going great lengths: a mother and son’s journey with fibular hemimelia

By CONTRIBUTOR

5 April 2023

Patient voice

Wings of Fire: escaping the shadows of a rare disease that was undiagnosed for 25 years

By CONTRIBUTOR

11 January 2023

Patient voice

Passing on a rare disease: a RARE mother’s journey from ‘blameless guilt’ to joy

By CONTRIBUTOR

5 September 2022

Patient voice

Making peace with numbers

By CONTRIBUTOR

6 June 2022

Patient voice

A story of heartbreak and hope: Juju’s journey with CLN2 Batten disease

By CONTRIBUTOR

9 May 2022

Patient voice

The rare and wonderful opportunity of parenting a child with a RARE condition

By CONTRIBUTOR

29 April 2022

Patient voice

Redefine: Max Feinstein’s concept album inspired by his life with haemophilia

By CONTRIBUTOR

4 April 2022

Patient voice

MNGIE: Verity Grainger’s mission to raise funds for a life-saving therapy

By CONTRIBUTOR

30 March 2022

Patient voice

Cavernomas—a patient’s efforts to understand the possible systemic implications of a defect in the KRIT1 (CCM1) gene

By CONTRIBUTOR

14 February 2022

« Previous 1 2 3 4 Next »